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Publications (10 of 67) Show all publications
Ayoub, M., Udo, C., Årestedt, K., Kreicbergs, U. & Lövgren, M. (2024). The Family Talk Intervention in Pediatric Oncology: Potential Effects Reported by Parents. Children, 11(1), 95-95
Open this publication in new window or tab >>The Family Talk Intervention in Pediatric Oncology: Potential Effects Reported by Parents
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2024 (English)In: Children, E-ISSN 2227-9067, Vol. 11, no 1, p. 95-95Article in journal (Refereed) Published
National Category
Pediatrics Social Work
Identifiers
urn:nbn:se:du-47806 (URN)10.3390/children11010095 (DOI)001149200800001 ()38255408 (PubMedID)2-s2.0-85183422756 (Scopus ID)
Available from: 2024-01-15 Created: 2024-01-15 Last updated: 2024-02-09Bibliographically approved
Sandegärd, M. & Udo, C. (2023). Existentiella samtal inom hälso- och sjukvård: Kuratorers erfarenheter av samtal om döden. Socialmedicinsk Tidskrift, 100(1), 88-96
Open this publication in new window or tab >>Existentiella samtal inom hälso- och sjukvård: Kuratorers erfarenheter av samtal om döden
2023 (Swedish)In: Socialmedicinsk Tidskrift, ISSN 0037-833X, Vol. 100, no 1, p. 88-96Article in journal (Refereed) Published
National Category
Social Work
Identifiers
urn:nbn:se:du-45191 (URN)
Available from: 2023-01-20 Created: 2023-01-20 Last updated: 2023-09-21Bibliographically approved
Landfeldt, E., Udo, C., Lövgren, M., Sejersen, T. & Kreicbergs, U. (2023). Health-related quality of life of children with spinal muscular atrophy in Sweden: A prospective cohort study in the era of disease-modifying therapy. European journal of paediatric neurology, 46, 67-73
Open this publication in new window or tab >>Health-related quality of life of children with spinal muscular atrophy in Sweden: A prospective cohort study in the era of disease-modifying therapy
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2023 (English)In: European journal of paediatric neurology, ISSN 1090-3798, E-ISSN 1532-2130, Vol. 46, p. 67-73Article in journal (Refereed) Published
Abstract [en]

The objective of this study was to estimate change over time in health-related quality of life (HRQoL) of children with spinal muscular atrophy (SMA) in Sweden. Children with SMA were identified via the National Patient Register by the National Board of Health and Welfare in Sweden. Patient HRQoL was caregiver proxy-assessed using the Pediatric Quality of Life Inventory 4.0 Generic Core Scales at baseline, as well as at 6, 12, and 18 months of follow-up. Results were stratified by SMA type. Mothers and fathers to 27 children with SMA (mean patient age: 9.17 years; 59% female) participated in the study. All patients received disease-modifying therapy. At baseline, across SMA types, the mean total score was estimated at between 52.68 and 59.19, Physical Functioning score at between 26.39 and 40.34, Emotional Functioning score at between 66.82 and 68.57, Social Functioning score at between 55.00 and 70.45, and School Functioning score at between 70.45 and 78.33. The mean annual total score change was estimated at −2.03 for SMA type I, 4.11 for SMA type II, and 1.12 for SMA type III. In conclusion, we show that SMA has a detrimental impact on HRQoL that extends above and beyond somatic disability. Children with SMA type II experienced a dramatic increase in HRQoL over time, predominantly related to improvement in physical and social functioning. Our data helps quantify the patient burden of disease and adds to the rapidly expanding body of evidence of the effectiveness of recently approved disease-modifying therapies for SMA. © 2023 European Paediatric Neurology Society

Keywords
Burden; Health; Neuromuscular disease; Nusinersen; Quality of life; Risdiplam; Well-being
National Category
Nursing
Research subject
Health and Welfare, Familjers och personals erfarenheter, överväganden och ställningstaganden avseende nya medicinska möjligheter för barn med spinal muskelatrofi (SMA)
Identifiers
urn:nbn:se:du-46457 (URN)10.1016/j.ejpn.2023.06.008 (DOI)001045017000001 ()37473536 (PubMedID)2-s2.0-85164996326 (Scopus ID)
Available from: 2023-07-14 Created: 2023-07-14 Last updated: 2023-08-24Bibliographically approved
Eneslätt, M., Ayoub, M., Udo, C., Kreicbergs, U. & Lövgren, M. (2023). Mål och innehåll i samtal med familjer  inom stödprogrammet Family Talk Intervention i barnonkologi. In: : . Paper presented at Nationella konferensen i palliativ vård 2023, Malmö 2-4 oktober 2023.
Open this publication in new window or tab >>Mål och innehåll i samtal med familjer  inom stödprogrammet Family Talk Intervention i barnonkologi
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2023 (Swedish)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Nursing
Research subject
Health and Welfare, Ett familjebaserat stödprogram till barnfamiljer där en förälder eller ett barn har svår sjukdom
Identifiers
urn:nbn:se:du-46946 (URN)
Conference
Nationella konferensen i palliativ vård 2023, Malmö 2-4 oktober 2023
Available from: 2023-10-03 Created: 2023-10-03 Last updated: 2023-10-03Bibliographically approved
Ayoub, M., Udo, C. & Randell, E. (2023). Promoting social engagement for young adults living in social isolation in Sweden: Social workers and health care professionals’ perceptions of success factors. Nordic Social Work Research (1), 63-75
Open this publication in new window or tab >>Promoting social engagement for young adults living in social isolation in Sweden: Social workers and health care professionals’ perceptions of success factors
2023 (English)In: Nordic Social Work Research, ISSN 2156-857X, E-ISSN 2156-8588, no 1, p. 63-75Article in journal (Refereed) Published
Keywords
collaboration, empowerment, integrated interventions, NEET, social withdrawal
National Category
Social Work
Identifiers
urn:nbn:se:du-37441 (URN)10.1080/2156857X.2021.1946710 (DOI)001026167500006 ()2-s2.0-85148452159 (Scopus ID)
Available from: 2021-06-20 Created: 2021-06-20 Last updated: 2023-08-07Bibliographically approved
Högsnes, M., Grim, K., Udo, C., Ullsten, A. & Landstedt, E. (2023). Psychosocial support in healthcare settings from the perspective of persons with acquired brain injury (ABI) and their relatives. In: : . Paper presented at HÅLLBARHETENS TEMPORALITET, Centrum för forskning om hållbar samhällsförändring, CRS..
Open this publication in new window or tab >>Psychosocial support in healthcare settings from the perspective of persons with acquired brain injury (ABI) and their relatives
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2023 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Social Work
Identifiers
urn:nbn:se:du-47339 (URN)
Conference
HÅLLBARHETENS TEMPORALITET, Centrum för forskning om hållbar samhällsförändring, CRS.
Available from: 2023-12-05 Created: 2023-12-05 Last updated: 2023-12-05Bibliographically approved
Melin-Johansson, C., Sveen, J., Lövgren, M. & Udo, C. (2022). A third of dying patients do not have end-of-life discussions with a physician: A nationwide registry study.. Palliative & Supportive Care, 20(3), 357-362
Open this publication in new window or tab >>A third of dying patients do not have end-of-life discussions with a physician: A nationwide registry study.
2022 (English)In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 20, no 3, p. 357-362Article in journal (Refereed) Published
Abstract [en]

OBJECTIVE: The aim of the study was to explore the proportion of adult patients and next-of-kin who had end-of-life (EOL) discussions and associated factors.

METHOD: A retrospective nationwide registry study was reported with data from the Swedish Register of Palliative Care. All patients in Sweden in hospitals, nursing homes, own homes, community, and palliative care units during 2015-2017 and their next-of-kin were included. Data were reported to the register by healthcare staff, based on diseased patients' records regarding their last days of life, and were voluntary. Descriptive statistics illustrated the proportion of patients/next-of-kin who had EOL discussions and logistic regressions were used to examine associated factors.

RESULTS: About half of the patients (46%) did have an EOL discussion, but a third (32%) did not. Associated factors of those who did not have an EOL discussion were dementia (48.5%) or stroke (47.5%), older age (38.4%), being female (33.6%), being cared for in a nursing home (41.3%), or hospital (40.3%), having lost decision-making ability months before death (58.9%), and not having a documented decision to shift to EOL care (82.7%). Younger patients diagnosed with cancer and cared for at a palliative unit were more likely to have EOL discussions. The regression analysis showed similar results for next-of-kin.

SIGNIFICANCE OF RESULTS: The result shows that not all patients with palliative care needs have equal access to EOL discussions, despite efforts at a national level and the recognized benefits of timely communication about the EOL care. Further efforts must be made to achieve EOL discussions for all patients.

Keywords
Communication, End of life, Older people, Palliative care, Quality indicators, Register study
National Category
Nursing
Identifiers
urn:nbn:se:du-37816 (URN)10.1017/S1478951521000973 (DOI)000778901000001 ()34158146 (PubMedID)2-s2.0-85108660805 (Scopus ID)
Available from: 2021-08-03 Created: 2021-08-03 Last updated: 2023-03-17Bibliographically approved
af Winklerfelt Hammarberg, S., Björkelund, C., Nejati, S., Magnil, M., Hange, D., Svenningsson, I., . . . Westman, J. (2022). Clinical effectiveness of care managers in collaborative primary health care for patients with depression: 12‑ and 24‑month follow‑up of a pragmatic cluster randomized controlled trial. BMC Primary Care, 23(1), Article ID 198.
Open this publication in new window or tab >>Clinical effectiveness of care managers in collaborative primary health care for patients with depression: 12‑ and 24‑month follow‑up of a pragmatic cluster randomized controlled trial
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2022 (English)In: BMC Primary Care, E-ISSN 2731-4553, Vol. 23, no 1, article id 198Article in journal (Refereed) Published
Abstract [en]

Background: In previous studies, we investigated the effects of a care manager intervention for patients withdepression treated in primary health care. At 6 months, care management improved depressive symptoms, remission,return to work, and adherence to anti-depressive medication more than care as usual. The aim of this study wasto compare the long-term effectiveness of care management and usual care for primary care patients with depressionon depressive symptoms, remission, quality of life, self-efficacy, confidence in care, and quality of care 12 and24 months after the start of the intervention.Methods: Cluster randomized controlled trial that included 23 primary care centers (11 intervention, 12 control)in the regions of Västra Götaland and Dalarna, Sweden. Patients ≥18 years with newly diagnosed mild to moderatedepression (n = 376: 192 intervention, 184 control) were included. Patients at intervention centers co-developed astructured depression care plan with a care manager. Via 6 to 8 telephone contacts over 12 weeks, the care managerfollowed up symptoms and treatment, encouraged behavioral activation, provided education, and communicatedwith the patient’s general practitioner as needed. Patients at control centers received usual care. Adjusted mixedmodel repeated measure analysis was conducted on data gathered at 12 and 24 months on depressive symptomsand remission (MADRS-S); quality of life (EQ5D); and self-efficacy, confidence in care, and quality of care (study-specificquestionnaire).Results: The intervention group had less severe depressive symptoms than the control group at 12 (P = 0.02) butnot 24 months (P = 0.83). They reported higher quality of life at 12 (P = 0.01) but not 24 months (P = 0.88). Differencesin remission and self-efficacy were not significant, but patients in the intervention group were more confident that they could get information (53% vs 38%; P = 0.02) and professional emotional support (51% vs 40%; P = 0.05) from theprimary care center.Conclusions: Patients with depression who had a care manager maintained their 6-month improvements in symptomsat the 12- and 24-month follow-ups. Without a care manager, recovery could take up to 24 months. Patients withcare managers also had significantly more confidence in primary care and belief in future support than controls.

Keywords
Care manager, Collaborative care, Depression, Primary health care, Quality of life, Symptom severity, Confidence in care
National Category
General Practice
Research subject
Health and Welfare, Care Manager - Vårdsamordnare som spindeln i nätet för patienter med depression i primärvården
Identifiers
urn:nbn:se:du-42126 (URN)10.1186/s12875-022-01803-x (DOI)000838085200003 ()35945493 (PubMedID)2-s2.0-85135687418 (Scopus ID)
Funder
Region Västra GötalandKarolinska Institute
Available from: 2022-08-15 Created: 2022-08-15 Last updated: 2023-03-17
Matérne, M., Udo, C., Thermaenius, I. & Strandberg, T. (2022). Hälso- och sjukvårdskuratorns funktion i rehabilitering för personer med stroke. Socialmedicinsk Tidskrift (1), 76-86
Open this publication in new window or tab >>Hälso- och sjukvårdskuratorns funktion i rehabilitering för personer med stroke
2022 (Swedish)In: Socialmedicinsk Tidskrift, ISSN 0037-833X, no 1, p. 76-86Article in journal (Refereed) Published
Abstract [sv]

Att stödja patienter i rehabilitering efter stroke är en viktig funktion för hälsoochsjukvårdskuratorn. I denna artikel analyseras hälso- och sjukvårdskuratornsfunktion utifrån ett systemteoretiskt perspektiv med stöd av patienternaserfarenheter av resiliens och livskvalitet. Intervjuer med 19 personermed stroke sekundäranalyserades tematiskt och resulterade i fem områdenav betydelse för hälso- och sjukvårdskuratorns funktion. De teman somframkom på mikronivå var: trygghet och förutsägbarhet; mening och hopp.På mesonivå: socialt och formellt stöd; samordna och informera. På makronivå:kunskapsspridning och kompetens. Den legitimerade hälso- och sjukvårdskuratornfunktioner återfinns således systemteoretiskt på alla nivåervilket innebär att de professionellt antar en helhetssyn med fokus på individeni relation till dennes situation och kontext.

National Category
Social Work
Identifiers
urn:nbn:se:du-39653 (URN)
Available from: 2022-02-22 Created: 2022-02-22 Last updated: 2023-04-14Bibliographically approved
Lövgren, M., Udo, C. & Kreicbergs, U. (2022). Is the Family Talk Intervention feasible in paediatric oncology? An evaluation of a family-based psychosocial intervention. Acta Paediatrica, 111(3), 684-692
Open this publication in new window or tab >>Is the Family Talk Intervention feasible in paediatric oncology? An evaluation of a family-based psychosocial intervention
2022 (English)In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 111, no 3, p. 684-692Article in journal (Refereed) Published
Keywords
Beardslee’s family intervention, Complex intervention, Family Talk Intervention, Psychosocial support, Family intervention, Paediatric oncology
National Category
Health Sciences
Research subject
Health and Welfare, Ett familjebaserat stödprogram till barnfamiljer där en förälder eller ett barn har svår sjukdom
Identifiers
urn:nbn:se:du-38777 (URN)10.1111/apa.16190 (DOI)000721467100001 ()34787928 (PubMedID)2-s2.0-85119665807 (Scopus ID)
Projects
Family Talk Intervention (FTI)-Stödprogram för familjer där ett barn har cancer
Funder
Swedish Childhood Cancer Foundation, TJ2015-0005, PR2016-013Magnus Bergvall Foundation, 2018-02507
Available from: 2021-11-23 Created: 2021-11-23 Last updated: 2023-04-14Bibliographically approved
Projects
The Family Talk Intervention in clinical practice when a parent with dependent children or a child is severely ill: An effectiveness-implementation study [2021-00999_VR]; Marie Cederschiöld University; Publications
Eneslätt, M., Ayoub, M., Udo, C., Kreicbergs, U. & Lövgren, M. (2023). Mål och innehåll i samtal med familjer  inom stödprogrammet Family Talk Intervention i barnonkologi. In: : . Paper presented at Nationella konferensen i palliativ vård 2023, Malmö 2-4 oktober 2023.
Barn delar med sig av hur det är att leva med svår sjukdomPsykosocialt stöd och kuratorers arbete inom hälso- och sjukvård
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0003-2853-0575

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