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A new diabetes questionnaire to add patients’ perspectives to diabetes care: A nationwide cross-sectional study among adults with type 1 and type 2 diabetes.
Högskolan Dalarna, Akademin Utbildning, hälsa och samhälle, Omvårdnad. Department of Molecular and Clinical Medicine, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.ORCID-id: 0000-0002-8267-592X
Högskolan Dalarna, Akademin Utbildning, hälsa och samhälle, Omvårdnad. Uppsala University.ORCID-id: 0000-0001-8682-2045
Sophiahemmet University, Stockholm, Sweden; Karolinska Institutet, Department of Clinical Sciences and Education, Södersjukhuset, Stockholm, Sweden.ORCID-id: 0000-0003-3309-136X
Lund University, Department of Clinical Sciences in Malmö, Health Economics Unit, Medicon Village, Lund, Sweden.ORCID-id: 0000-0001-6292-7002
Vise andre og tillknytning
2019 (engelsk)Konferansepaper, Oral presentation with published abstract (Fagfellevurdert)
sted, utgiver, år, opplag, sider
2019.
HSV kategori
Forskningsprogram
Hälsa och välfärd
Identifikatorer
URN: urn:nbn:se:du-31087OAI: oai:DiVA.org:du-31087DiVA, id: diva2:1369225
Konferanse
EASD (The European Association for the Study of Diabetes) Annual meeting 2019, Barcelona, 2019-09-20
Tilgjengelig fra: 2019-11-11 Laget: 2019-11-11 Sist oppdatert: 2019-11-11bibliografisk kontrollert
Inngår i avhandling
1. Patient Perspectives brought to the Fore for Diabetes Care: Descriptions as well as Development and Testing of the Diabetes Questionnaire
Åpne denne publikasjonen i ny fane eller vindu >>Patient Perspectives brought to the Fore for Diabetes Care: Descriptions as well as Development and Testing of the Diabetes Questionnaire
2019 (engelsk)Doktoravhandling, med artikler (Annet vitenskapelig)
Abstract [en]

Aim: The overall aims were to describe perspectives of living with diabetes, to develop a patient-reported outcome and experience measure for the Swedish National Diabetes Register, and to initiate the evaluation of evidence of measurement quality for that measure. A further aim was to describe health-related quality of life and to assess its associations with glycaemic control.

Methods and results: In study I, aspects important to adults with diabetes embracing experiences of daily life and support from diabetes care were identified through 29 semi-structured qualitative interviews. In study II, those aspects were used to develop the Diabetes Questionnaire. Expert reviews, six cognitive interviews, and a regional survey of 1,599 adults with diabetes yielded supporting evidence for content and face validity, test-retest reliability, and answerability. For studies III-IV, the Diabetes Questionnaire and the SF-36v2 were presented to 4,976 adults with diabetes in a nationwide cross-sectional survey. In study III, adjusted regression analyses showed that adults with high-risk glycaemic control have lower health-related quality of life than those with well-controlled glycaemic control. In study IV, correlation, machine learning and adjusted regression analyses demonstrated support for construct validity. The Diabetes Questionnaire captures some SF-36v2 dimensions while adding information not targeted by clinical variables or the SF 36v2 and it is sensitive to differences between groups of glycaemic control.

Conclusion: The Diabetes Questionnaire has the potential to support clinical meetings and assessments and hence help to bring patients’ perspectives to the fore for diabetes care.

sted, utgiver, år, opplag, sider
Gothenburg: University of Gothenburg, 2019
Emneord
Diabetes Mellitus; Patient-Reported Outcome Measures; Qualitative Research; Surveys and Questionnaires; Cross-Sectional Studies
HSV kategori
Forskningsprogram
Hälsa och välfärd
Identifikatorer
urn:nbn:se:du-31088 (URN)978-91-7833-668-5 (ISBN)978-91-7833-669-2 (ISBN)
Disputas
2019-11-29, Jubileumsaulan, Sahlgrenska universitetssjukhuset, Göteborg, 13:00 (svensk)
Opponent
Veileder
Tilgjengelig fra: 2019-11-11 Laget: 2019-11-11 Sist oppdatert: 2019-11-11bibliografisk kontrollert

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https://www.easd.org/virtualmeeting/home.html#!resources/a-new-diabetes-questionnaire-to-add-patients-perspectives-to-diabetes-care-a-nationwide-cross-sectional-study-among-adults-with-type-1-and-type-2-diabetes

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Svedbo Engström, MariaLeksell, Janeth

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