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That Mr. Alzheimer ... you never know what he's up to, but what about me?: A discourse analysis of how Swedish spouse cargivers can make their subject positions understandable and meaningful
Malardalen Univ, Sch Hlth Care & Social Welf, Vasteras, Sweden..
Malardalen Univ, Sch Hlth Care & Social Welf, Vasteras, Sweden..
Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing. Karolinska Institutet.ORCID iD: 0000-0003-2511-9502
2018 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 13, no 1, article id 1554025Article in journal (Refereed) Published
Abstract [en]

The spouses of people suffering from dementia are commonly first-in-line caregivers. This can have a considerable effect on their own lives, health and marriages. Several studies have focused on spouses' experiences, but very few have focused in any depth on their descriptions of themselves as subjects. Therefore, the aim of this study is to describe how spouse caregivers can express themselves when living with and caring for their partners with dementia. The study has a qualitative approach with a discourse analysis design and uses analytical tools such as rhetoric, subject positions and categorization. The results reveal three subject positions: as an actor, as a parent and as a survivor. The results show that as spouses struggle with external and internal clashes as subjects, they therefore need to develop coping strategies. They also experience pronounced loneliness and a risk to their own health. There is thus a need to support these spouses as individuals in their differing and changing needs.

Place, publisher, year, edition, pages
Taylor & Francis, 2018. Vol. 13, no 1, article id 1554025
Keywords [en]
Alzheimer's, caregiving, discourse analysis, dementia, experience, interviews, subject positions, spouses, qualitative
National Category
Health Sciences
Research subject
Health and Welfare
Identifiers
URN: urn:nbn:se:du-29225DOI: 10.1080/17482631.2018.1554025ISI: 000453030700001PubMedID: 30704369Scopus ID: 2-s2.0-85058576525OAI: oai:DiVA.org:du-29225DiVA, id: diva2:1274295
Note

Open Access APC beslut 23/2018

Available from: 2018-12-29 Created: 2018-12-29 Last updated: 2019-02-05Bibliographically approved

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Marmstål Hammar, Lena

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