du.sePublikationer
Ändra sökning
RefereraExporteraLänk till posten
Permanent länk

Direktlänk
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • chicago-author-date
  • chicago-note-bibliography
  • Annat format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annat språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf
Being 'alone' striving for belonging and adaption in a new reality: The experiences of spouse carers of persons with dementia
Högskolan Dalarna, Akademin Utbildning, hälsa och samhälle, Omvårdnad. Karolinska Insitute, Mälardalen University.ORCID-id: 0000-0003-2511-9502
Florida Atlantic University, USA.
Mälardalen University.
Högskolan Dalarna, Akademin Utbildning, hälsa och samhälle, Socialt arbete.ORCID-id: 0000-0002-8795-7555
2019 (Engelska)Ingår i: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, artikel-id 1471301219879343Artikel i tidskrift (Refereegranskat) Epub ahead of print
Abstract [en]

Background and aim: Spouse carers of a person with dementia report feeling lonely and trapped in their role, lacking support and having no time to take care of their own health. In Sweden, the support available for family carers is not specialised to meet the needs of spouse carers of people with dementia. The aim of the study described in this paper was to explore spouse carers’ experiences of caring for a partner with dementia, their everyday life as a couple and their support needs.

Methods: Nine spouse carers of a partner with dementia living at home were recruited through a memory clinic and a dementia organisation. Semi-structured interviews were conducted with the participants, focusing on their experiences of providing care, their support needs in relation to their caring situation, their personal well-being and their marital relationship. The interviews were transcribed and underwent qualitative content analysis.

Results: The analysis resulted in one overall theme Being   ‘alone’   striving   for   belonging   and adaption  in  a  new  reality, synthesized from four sub-themes: (1) Being  in  an  unknown  country; (2) Longing  for a  place  for  me  and  us; (3) Being  a  carer  first  and  a  person  second; and (4) Being  alone  in  a relationship.

Conclusions: The training of care professionals regarding the unique needs of spouse carers of people with dementia needs improvement, with education, in particular, focusing on their need to be considered as a person separate from being a carer and on the significance of the couple’s relationship for their mutual well-being.

Ort, förlag, år, upplaga, sidor
2019. artikel-id 1471301219879343
Nyckelord [en]
dementia, experience, marriage, persons with dementia, qualitative content analysis, spouse carer, support
Nationell ämneskategori
Omvårdnad
Forskningsämne
Hälsa och välfärd
Identifikatorer
URN: urn:nbn:se:du-31006DOI: 10.1177/1471301219879343ISI: 000489393300001PubMedID: 31583888Scopus ID: 2-s2.0-85074599068OAI: oai:DiVA.org:du-31006DiVA, id: diva2:1362588
Tillgänglig från: 2019-10-21 Skapad: 2019-10-21 Senast uppdaterad: 2019-12-06Bibliografiskt granskad

Open Access i DiVA

fulltext(257 kB)66 nedladdningar
Filinformation
Filnamn FULLTEXT01.pdfFilstorlek 257 kBChecksumma SHA-512
25c8149babdb76a43ada647db5e1301dc3017e49f9a0e6c49569671ce2bf86251f1694ac919dc454ad6762b490c35acefe4d3b7fe77fb21390e0731eb763255e
Typ fulltextMimetyp application/pdf

Övriga länkar

Förlagets fulltextPubMedScopus

Personposter BETA

Marmstål Hammar, LenaMcKee, Kevin

Sök vidare i DiVA

Av författaren/redaktören
Marmstål Hammar, LenaMcKee, Kevin
Av organisationen
OmvårdnadSocialt arbete
I samma tidskrift
Dementia
Omvårdnad

Sök vidare utanför DiVA

GoogleGoogle Scholar
Totalt: 66 nedladdningar
Antalet nedladdningar är summan av nedladdningar för alla fulltexter. Det kan inkludera t.ex tidigare versioner som nu inte längre är tillgängliga.

doi
pubmed
urn-nbn

Altmetricpoäng

doi
pubmed
urn-nbn
Totalt: 52 träffar
RefereraExporteraLänk till posten
Permanent länk

Direktlänk
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • chicago-author-date
  • chicago-note-bibliography
  • Annat format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annat språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf