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Self-management from the perspective of people with stroke – An interview study
Dalarna University, School of Health and Welfare, Care Sciences. Dalarna University, School of Health and Welfare, Medical Science.ORCID iD: 0000-0002-5806-8812
Dalarna University, School of Health and Welfare, Caring Science/Nursing. Lund University.ORCID iD: 0000-0003-2887-3674
Dalarna University, School of Health and Welfare, Medical Science. Center for Clinical Research Dalarna - Uppsala University, Falun; Uppsala University.ORCID iD: 0000-0002-8709-4446
Northumbria University, Newcastle upon Tyne, UK..
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2023 (English)In: Patient Education and Counseling, ISSN 0738-3991, E-ISSN 1873-5134, Vol. 112, article id 107740Article in journal (Refereed) Published
Abstract [en]

Objective: Self-management support can improve quality of life, mood, self-efficacy, and physical function following a stroke. Knowledge of how people with stroke understand and experience self-management in different contexts is crucial to developing effective self-management support. This study explored how people with stroke understand and practice self-management during the post-acute phase. Method: A descriptive study using qualitative content analysis to explore data from semistructured interviews Results: Eighteen participants were interviewed. Most participants interpreted self-management as ‘taking care of their business’ and ‘being independent”. However, they encountered difficulties performing daily activities, for which they felt unprepared. Although interest in implementing self-management support increases, participants did not report receiving specific advice from healthcare professionals. Conclusion: People continue to feel unprepared to manage everyday activities after hospital discharge and must largely work things out for themselves. There is an overlooked opportunity to start the process of self-management support earlier in the stroke pathway, with healthcare professionals and people with stroke combining their skills, ideas and expertise. This would enable confidence to self-management to flourish rather than decrease during the transition from hospital to home. Practical implications: Individual tailored self-management support could help people with stroke more successfully manage their daily lives post-stroke. © 2023 The Authors

Place, publisher, year, edition, pages
Elsevier Ireland Ltd , 2023. Vol. 112, article id 107740
Keywords [en]
Content analysis, Qualitative, Self-management, Self-management support, Stroke, Stroke rehabilitation
National Category
Nursing
Identifiers
URN: urn:nbn:se:du-45873DOI: 10.1016/j.pec.2023.107740ISI: 000983762000001PubMedID: 37059027Scopus ID: 2-s2.0-85152146746OAI: oai:DiVA.org:du-45873DiVA, id: diva2:1752103
Available from: 2023-04-20 Created: 2023-04-20 Last updated: 2024-06-10Bibliographically approved

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Klockar, ErikaKylén, MayaGustavsson, CatharinaElf, Marie

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CiteExportLink to record
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Citation style
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