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Cancer-bereaved siblings' positive and negative memories and experiences of illness and death: A nationwide follow-up
Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing.ORCID iD: 0000-0002-6133-8975
2017 (English)In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, 1-8 p.Article in journal (Refereed) In press
Abstract [en]

Objective: Our aim was to explore bereaved siblings' positive and negative memories and experiences of their brother's or sister's illness and death.

Method: In our nationwide Swedish study, 174 of 240 (73%) bereaved siblings participated, and 70% responded to two open-ended statements, which focused on siblings' positive and negative memories and experiences of illness and death. The data were analyzed using systematic text condensation. Results:: The bereaved siblings' responses were categorized into four different themes: (1) endurance versus vulnerability, (2) family cohesion versus family conflicts, (3) growth versus stagnation, and (4) professional support versus lack of professional support. The first theme expressed endurance as the influence that the ill siblings' strong willpower, good mood, and stamina in their difficult situation had on healthy siblings, whereas vulnerability was expressed as the feeling of emptiness and loneliness involved with having an ill and dying sibling. In the second theme, family cohesion was expressed as the bonds being strengthened between family members, whereas family conflicts often led siblings to feel invisible and unacknowledged. In the third theme, most siblings expressed the feeling that they grew as individuals in the process of their brother's or sister's illness and death, whereas others experienced stagnation because of the physical and mental distress they bore throughout this time, often feeling forgotten. In the last theme—professional support—most siblings perceived physicians and staff at the hospital as being warm, kind, and honest, while some siblings had negative experiences.

Significance of results: The study shows that bereaved siblings can have positive memories and experiences. The significance of the positive buffering effect on bereaved siblings' own endurance, personal growth, family cohesion, and social support should be noted. This knowledge can be valuable in showing healthcare professionals the importance of supporting the siblings of children with cancer throughout the cancer trajectory and afterwards into bereavement. 

Place, publisher, year, edition, pages
2017. 1-8 p.
Keyword [en]
Bereavement, Cancer, Pediatric palliative care, Psychosocial issues, Siblings
National Category
Health Sciences
Research subject
Health and Welfare
Identifiers
URN: urn:nbn:se:du-25629DOI: 10.1017/S1478951517000529PubMedID: 28641585Scopus ID: 2-s2.0-85021092731OAI: oai:DiVA.org:du-25629DiVA: diva2:1128319
Available from: 2017-07-24 Created: 2017-07-24 Last updated: 2017-07-25Bibliographically approved

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CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
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  • Other locale
More languages
Output format
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