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Anhörigas upplevelser av att medverka i den palliativa vården: en litteraturöversikt
Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing.
Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing.
2018 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Relatives' experiences of participating in palliative care: a literature review (English)
Abstract [sv]

Bakgrund:

Sjuksköterskans arbetsuppgifter i den palliativa vården är att förebygga och behandla symtom hos patienter och även att kunna stötta anhöriga. Anhöriga har en viktig roll att stötta patienten i den palliativa vården. Därför är det viktigt att belysa anhörigas upplevelser av att medverka i palliativ vård. Syfte: Syftet var att belysa anhörigas upplevelser av att medverka i den palliativa vården av en familjemedlem. Metod: En litteraturöversikt baserad på 16 vetenskapliga artiklar. Resultat: Det identifierades tre huvudkategorier: Känslor hos de anhöriga, Påverkade relationer och kommunikation samt Påverkan på den anhöriges liv. Att medverka i den palliativa vården kunde ge de anhöriga blandade känslor. Negativt laddade känslor i form av maktlöshet och skuldkänslor kunde förekomma, men också positivt laddade känslor till exempel att de upptäckte sin egen styrka och att få ge tillbaka något till familjemedlemmen. Relationerna med familjemedlemmen och andra människor förändrades, vissa upplevde att relationen blev bättre medan andra upplevde att det blev sämre. Kommunikation var en viktig faktor för att den palliativa vården skulle bli bra.

Slutsats:

Det är viktigt att vårdpersonal är medveten om känslor som kan uppstå hos en anhörig som medverkar i palliativvård samt att anpassa sin kommunikation och vara observant på vilka behov den anhörige har.

Abstract [en]

Background

: The nurse's job assignments in the palliative care are partly to prevent and treat symptoms in patients, but also to support relatives. Relatives have an important role in the palliative care to support the patient. Therefore, it is important to illuminate the relatives’ experiences of participating in palliative care.

Aim

: The aim was to illuminate relatives’ experiences to be involved in palliative care.

Method

: A literature review based on 16 scientific articles.

Results:

Three main categories were identified: Relatives’ feelings, Affected relationships and communication and Impact on the relatives’ life. To participate in the palliative care of a family member could give the relatives mixed feelings. Negative feelings in the form of powerlessness and guilt could occur, while positive feelings could be that they discovered their own strength and that they were able to give something back to the family member. Relationships with family members and other people changed, some people felt that it was to the better while others felt that it was for the worse. Communication was an important factor for the care to be good.

Conclusion

: It is important for healthcare professionals to be aware of feelings that may occur for a relative who participates in the palliative care. Healthcare professionals need to adjust their communication and be observant of the needs of the relative.

Place, publisher, year, edition, pages
2018.
Keywords [en]
Experiences, Involved, Literature review, Palliative care, Personcentered care, Relatives.
Keywords [sv]
Anhöriga, Litteraturöversikt, Medverkan, Palliativ vård, Personcentrerad vård, Upplevelser.
National Category
Nursing
Identifiers
URN: urn:nbn:se:du-27738OAI: oai:DiVA.org:du-27738DiVA, id: diva2:1211303
Available from: 2018-05-30 Created: 2018-05-30

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