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Co-creating an eHealth tool to support self-management in COPD:perspectives on usefulness and relevance
Dalarna University, School of Education, Health and Social Studies, Medical Science. Umeå universitet.ORCID iD: 0000-0003-0581-2895
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2018 (English)In: JMIR Human Factors, E-ISSN 2292-9495, Vol. 5, no 4, article id e10801Article in journal (Refereed) Published
Abstract [en]

Background: New strategies are urgently needed to support self-management for people with chronic obstructive pulmonary disease (COPD) in primary care. The use of electronic health (eHealth) solutions is promising. However, there is a lack of knowledge about how such eHealth tools should be designed in order to be perceived as relevant and useful and meet the needs and expectations of the health professionals as well as people with COPD and their relatives.

Objective: The objective of this study was to explore the aspects of an eHealth tool design and content that make it relevant and useful for supporting COPD-related self-management strategies from the perspective of health care professionals, people with COPD and their relatives, and external researchers.

Methods: Data were collected during the development of an eHealth tool. A cocreation process was carried out with participants from two primary care units in northern Sweden and external researchers. Individual interviews were performed with health care professionals (n=13) as well as people with COPD (n=6) and their relatives (n=2), and focus group discussions (n=9) were held with all groups of participants. Data were analyzed using qualitative content analysis.

Results: The overarching theme, reinforcing existing support structures, reflects participant views that the eHealth tool needs to be directly applicable and create a sense of commitment in users. Moreover, participants felt that the tool needs to fit with existing routines and contexts and preferably should not challenge existing hierarchies between health care professionals and people with COPD. Important content for health care professionals and people with COPD included knowledge about self-management strategies. Videos were regarded as the most effective method for communicating such knowledge.

Conclusions: The cocreation in the development process enables participant perspectives and priorities to be built into the eHealth tool. This is assumed to contribute to a tool that is useful and relevant and, therefore, adopted into clinical practice and everyday life. Findings from this study can inform the development of eHealth tools for people with COPD in other contexts, as well as the development of eHealth tools for self-management support of other chronic diseases.

Place, publisher, year, edition, pages
2018. Vol. 5, no 4, article id e10801
Keywords [en]
COPD; eHealth; cocreation; self-management; primary care, chronic disease
National Category
Health Sciences
Research subject
Health and Welfare
Identifiers
URN: urn:nbn:se:du-28274DOI: 10.2196/10801PubMedID: 30368440OAI: oai:DiVA.org:du-28274DiVA, id: diva2:1237431
Available from: 2018-08-08 Created: 2018-08-08 Last updated: 2018-10-30Bibliographically approved

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Tistad, Malin

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CiteExportLink to record
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Citation style
  • apa
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More styles
Language
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Output format
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