du.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • chicago-author-date
  • chicago-note-bibliography
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Family talk intervention in paediatric oncology: a pilot study protocol
Department of Health Care Sciences, Palliative Research Centre, Ersta Sköndal Bräcke University College, Stockholm, Sweden.
Department of Health Care Sciences, Palliative Research Centre, Ersta Sköndal Bräcke University College, Stockholm, Sweden.
Dalarna University, School of Education, Health and Social Studies, Social Work.ORCID iD: 0000-0003-2853-0575
2019 (English)In: BMJ Paediatrics Open, ISSN 2399-9772, Vol. 3, no 1, article id e000417Article in journal (Refereed) Published
Abstract [en]

Introduction: There is evidence that families with a child diagnosed with cancer need psychosocial support throughout the illness trajectory. Unfortunately, there is little research into psychosocial interventions for such families, especially interventions where the entire family is involved. The aim of this pilot study is therefore to evaluate a psychosocial intervention, the family talk intervention(FTI), in paediatric oncology in terms of study feasibility and potential effects.

Methods and analysis: This pretest/post-test intervention pilot study is based on families with a child diagnosed with cancer. All families that include at least one child aged 6–19 years (ill child and/or sibling) at one of the six paediatric oncology centres in Sweden between September 2018 and September 2019 will be asked about participation. The intervention consists of six meetings with the family (part of the family or the entire family), led by two interventionists. The core elements in the interventionare to support the families in talking about the illness and related subjects, support the parents in understandingthe needs of their children and how to support them and support the families in identifying their strengths and howto use them best. Mixed methods are used to evaluatethe intervention (web-based questionnaires, interviews, field notes and observations). Self-reported data from all family members are collected at baseline, directly after the intervention and 6 months later. Study outcomes are family communication, knowledge about the illness, resilience, quality of life and grief.

Ethics and dissemination: The study has been approved by the Regional Ethical Review Board in Stockholm (Dnr 2018/250-31/2 and 2018/1852–32). Data are processed in coded form, accessible only to the research team and stored at Ersta Sköndal Bräcke University College in a secure server.

Trial registration: ClinicalTrials. gov IdentifierNCT03650530, registered in August 2018.

Place, publisher, year, edition, pages
2019. Vol. 3, no 1, article id e000417
National Category
Health Sciences
Research subject
Health and Welfare, Stödprogram för familjer där ett barn har cancer
Identifiers
URN: urn:nbn:se:du-29352DOI: 10.1136/bmjpo-2018-000417PubMedID: 30815590Scopus ID: 2-s2.0-85073041415OAI: oai:DiVA.org:du-29352DiVA, id: diva2:1284610
Available from: 2019-02-01 Created: 2019-02-01 Last updated: 2019-10-22Bibliographically approved

Open Access in DiVA

fulltext(256 kB)104 downloads
File information
File name FULLTEXT01.pdfFile size 256 kBChecksum SHA-512
9bf7da2b597dc101edbc2c5b0668095c2e193e25f476097da8ee6d90503e82503615d81ac007c32b7df367982f753390bd22be3bc8a8b3a4001f4087b9bc5a6a
Type fulltextMimetype application/pdf

Other links

Publisher's full textPubMedScopus

Authority records BETA

Udo, Camilla

Search in DiVA

By author/editor
Udo, Camilla
By organisation
Social Work
Health Sciences

Search outside of DiVA

GoogleGoogle Scholar
Total: 104 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 198 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • chicago-author-date
  • chicago-note-bibliography
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf