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A new diabetes questionnaire to add patients’ perspectives to diabetes care: A nationwide cross-sectional study among adults with type 1 and type 2 diabetes.
Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing. Department of Molecular and Clinical Medicine, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.ORCID iD: 0000-0002-8267-592X
Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing. Uppsala University.ORCID iD: 0000-0001-8682-2045
Sophiahemmet University, Stockholm, Sweden; Karolinska Institutet, Department of Clinical Sciences and Education, Södersjukhuset, Stockholm, Sweden.ORCID iD: 0000-0003-3309-136X
Lund University, Department of Clinical Sciences in Malmö, Health Economics Unit, Medicon Village, Lund, Sweden.ORCID iD: 0000-0001-6292-7002
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2019 (English)Conference paper, Oral presentation with published abstract (Refereed)
Place, publisher, year, edition, pages
2019.
National Category
Endocrinology and Diabetes
Research subject
Health and Welfare
Identifiers
URN: urn:nbn:se:du-31087OAI: oai:DiVA.org:du-31087DiVA, id: diva2:1369225
Conference
EASD (The European Association for the Study of Diabetes) Annual meeting 2019, Barcelona, 2019-09-20
Available from: 2019-11-11 Created: 2019-11-11 Last updated: 2019-11-11Bibliographically approved
In thesis
1. Patient Perspectives brought to the Fore for Diabetes Care: Descriptions as well as Development and Testing of the Diabetes Questionnaire
Open this publication in new window or tab >>Patient Perspectives brought to the Fore for Diabetes Care: Descriptions as well as Development and Testing of the Diabetes Questionnaire
2019 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Aim: The overall aims were to describe perspectives of living with diabetes, to develop a patient-reported outcome and experience measure for the Swedish National Diabetes Register, and to initiate the evaluation of evidence of measurement quality for that measure. A further aim was to describe health-related quality of life and to assess its associations with glycaemic control.

Methods and results: In study I, aspects important to adults with diabetes embracing experiences of daily life and support from diabetes care were identified through 29 semi-structured qualitative interviews. In study II, those aspects were used to develop the Diabetes Questionnaire. Expert reviews, six cognitive interviews, and a regional survey of 1,599 adults with diabetes yielded supporting evidence for content and face validity, test-retest reliability, and answerability. For studies III-IV, the Diabetes Questionnaire and the SF-36v2 were presented to 4,976 adults with diabetes in a nationwide cross-sectional survey. In study III, adjusted regression analyses showed that adults with high-risk glycaemic control have lower health-related quality of life than those with well-controlled glycaemic control. In study IV, correlation, machine learning and adjusted regression analyses demonstrated support for construct validity. The Diabetes Questionnaire captures some SF-36v2 dimensions while adding information not targeted by clinical variables or the SF 36v2 and it is sensitive to differences between groups of glycaemic control.

Conclusion: The Diabetes Questionnaire has the potential to support clinical meetings and assessments and hence help to bring patients’ perspectives to the fore for diabetes care.

Place, publisher, year, edition, pages
Gothenburg: University of Gothenburg, 2019
Keywords
Diabetes Mellitus; Patient-Reported Outcome Measures; Qualitative Research; Surveys and Questionnaires; Cross-Sectional Studies
National Category
Endocrinology and Diabetes
Research subject
Health and Welfare
Identifiers
urn:nbn:se:du-31088 (URN)978-91-7833-668-5 (ISBN)978-91-7833-669-2 (ISBN)
Public defence
2019-11-29, Jubileumsaulan, Sahlgrenska universitetssjukhuset, Göteborg, 13:00 (Swedish)
Opponent
Supervisors
Available from: 2019-11-11 Created: 2019-11-11 Last updated: 2019-11-11Bibliographically approved

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https://www.easd.org/virtualmeeting/home.html#!resources/a-new-diabetes-questionnaire-to-add-patients-perspectives-to-diabetes-care-a-nationwide-cross-sectional-study-among-adults-with-type-1-and-type-2-diabetes

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Svedbo Engström, MariaLeksell, Janeth

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CiteExportLink to record
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Citation style
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  • ieee
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