Dalarna University's logo and link to the university's website

du.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • chicago-author-date
  • chicago-note-bibliography
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Pain burden in children with cerebral palsy (CPPain) survey: Study protocol
Department of Research Telemark Hospital Skien Norway; Research Center for Habilitation and Rehabilitation Services and Models (CHARM) Institute of Health and Society University of Oslo Oslo Norway.
Department of Psychology University of Guelph Guelph ON Canada.
Department of Clinical Sciences Lund Skåne University Hospital Orthopedics Lund University Lund Sweden.
University Health Care Research Center and Swedish Institute for Disability Research Faculty of Medicine and Health Örebro University Örebro Sweden.
Show others and affiliations
Number of Authors: 152022 (English)In: Paediatric & neonatal pain, ISSN 2637-3807, Vol. 4, no 1, p. 11-21Article in journal (Refereed) Published
Abstract [en]

Pain is a significant health concern for children living with cerebral palsy (CP). There are no population-level or large-scale multi-national datasets using common measures characterizing pain experience and interference (ie, pain burden) and management practices for children with CP. The aim of the CPPain survey is to generate a comprehensive understanding of pain burden and current management of pain to change clinical practice in CP. The CPPain survey is a comprehensive cross-sectional study. Researchers plan to recruit approximately 1400 children with CP (primary participants) across several countries over 6-12 months using multimodal recruitment strategies. Data will be collected from parents or guardians of children with CP (0-17 years) and from children with CP (8-17 years) who are able to self-report. Siblings (12-17 years) will be invited to participate as controls. The CPPain survey consists of previously validated and study-specific questionnaires addressing demographic and diagnostic information, pain experience, pain management, pain interference, pain coping, activity and participation in everyday life, nutritional status, mental health, health-related quality of life, and the effect of the COVID-19 pandemic on pain and access to pain care. The survey will be distributed primarily online. Data will be analyzed using appropriate statistical methods for comparing groups. Stratification will be used to investigate subgroups, and analyses will be adjusted for appropriate sociodemographic variables. The Norwegian Regional Committee for Medical and Health Research Ethics and the Research Ethics Board at the University of Minnesota in USA have approved the study. Ethics approval in Canada, Sweden, and Finland is pending. In addition to dissemination through peer-reviewed journals and conferences, findings will be communicated through the CPPain Web site (www.sthf.no/cppain), Web sites directed toward users or clinicians, social media, special interest groups, stakeholder engagement activities, articles in user organization journals, and presentations in public media.

Place, publisher, year, edition, pages
2022. Vol. 4, no 1, p. 11-21
Keywords [en]
cerebral palsy, disability, pain, survey
National Category
Pediatrics Neurology
Identifiers
URN: urn:nbn:se:du-41444DOI: 10.1002/pne2.12049PubMedID: 35546915OAI: oai:DiVA.org:du-41444DiVA, id: diva2:1658647
Available from: 2022-05-17 Created: 2022-05-17 Last updated: 2022-05-17Bibliographically approved

Open Access in DiVA

fulltext(528 kB)149 downloads
File information
File name FULLTEXT01.pdfFile size 528 kBChecksum SHA-512
bc6df96db33c5fbca5d3a21466b4ceb9da24186f1c796b5b37a722cd02f4432ddf4027373f3dff6ece2e6024de102356a4b7e36c0a6e242f7fbf31fb1db2aa8c
Type fulltextMimetype application/pdf

Other links

Publisher's full textPubMed

Authority records

Wallin, Lars

Search in DiVA

By author/editor
Wallin, Lars
By organisation
Caring Science/Nursing
PediatricsNeurology

Search outside of DiVA

GoogleGoogle Scholar
Total: 149 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 571 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • chicago-author-date
  • chicago-note-bibliography
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf