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“Det sitter i ryggraden att det blir mitt ansvar att ta hand om henne”: En kvalitativ intervjustudie med vuxna syskon till personer med intellektuella funktionsnedsättningar
Dalarna University, School of Health and Welfare.
Dalarna University, School of Health and Welfare.
2023 (Swedish)Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesisAlternative title
“I feel it in my bones that it will be in my responsibility to take care of her” : A qualitative interview study with adult siblings of people with intellectual disabilities (English)
Abstract [sv]

Syftet med denna studie var att undersöka vilka tankar och uppfattningar som vuxna syskon har kring ett omsorgsansvar för ett syskon med intellektuell funktionsnedsättning (IF). Det empiriska materialet har inhämtats med hjälp av sex semistrukturerade intervjuer med vuxna personer som vuxit upp tillsammans med ett syskon med IF. Materialet har bearbetats utifrån tematisk analys där resultatet har diskuterats i relation till systemteori, rollteori samt tidigare forskning. Resultatet visar att erfarenheten att växa upp med ett syskon med IF är mestadels positiva och påvisar starka familjeband. Begreppet omsorgsansvar definierades i studien, samt att det visade sig att ansvaret för syskonen förändras i takt med att de växte upp och behoven förändrades. Studien visar att ytterligare forskning bör fokusera på att utveckla stöd för en bra övergång gällande omsorgsansvar från föräldrar till de vuxna syskonen. 

Abstract [en]

The aim of this study was to investigate what thoughts and perceptions adult siblings have about caregiving responsibility for a sibling with an intellectual disability (ID). The empirical material has been obtained through six semistructured interviews with adults who have grown up with a sibling with ID. The material has been processed based on thematic analysis where the results have been discussed in relation to systems theory, role theory and existing research. The results indicate that the experience of growing up with a sibling with ID is mostly positive and shows strong family relationships. The definition of the concept of caregiving responsibility was defined in the study, and it turned out that the resoponsibility of their siblings changed as they grew up and as such, their needs in means of care. The study indicates that further research should focus on developing support for a positive transition of caregiving responsibilities from parents to adult siblings

Place, publisher, year, edition, pages
2023.
Keywords [en]
Intellectual disability, Siblings, caregiving, relationships, role, support
Keywords [sv]
Intellektuell funktionsnedsättning, syskon, omsorgsansvar, relationer, roller, stöd
National Category
Social Work
Identifiers
URN: urn:nbn:se:du-45868OAI: oai:DiVA.org:du-45868DiVA, id: diva2:1752037
Subject / course
Social Work
Available from: 2023-04-20 Created: 2023-04-20

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CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • chicago-author-date
  • chicago-note-bibliography
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf