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The Well-Being of People with Dementia in Sweden and Hungary from the Perspective of Relatives: A Qualitative Interview Study
Dalarna University, School of Health and Welfare, Caring Science/Nursing.ORCID iD: 0000-0001-5351-2905
2023 (English)In: Health & Social Care in the Community, ISSN 0966-0410, E-ISSN 1365-2524, Vol. 2023, article id 4754066Article in journal (Refereed) Published
Abstract [en]

Background. Dementia not only has a negative effect on a person's well-being, but it also affects the well-being of their relatives. In this study, we examined how relatives perceive the well-being of people with dementia who live in nursing homes and how nursing staff contribute to the well-being of the residents they care for. Method. A qualitative study with a phenomenographic approach was applied. Ten individual semistructured interviews were conducted, five in Sweden and five in Hungary. In this study, the COREQ checklist for qualitative studies was followed. Results. The perceptions relatives had of what constituted well-being resulted in five categories of factors that could impact negatively or positively on a person's well-being: "Nursing care is adapted to the needs of the person with dementia," "Nursing is carried out by a sustainable care team," "The social needs of the person with dementia are met," "The person with dementia participates in meaningful activities," and "The person with dementia shows signs of feeling well." Conclusion. From relatives'' perspective, well-being can be created for people with dementia if nursing is person-centred and managers allow staff more time to socialize with the person with dementia. Relatives are essential cooperative partners in person-centred dementia care. Relevance to clinical practice. Person-centred care is essential. Relatives, nurses, and managers are important partners in making it possible. Competence in dementia and knowledge of values and ethics are needed to provide autonomy and well-being. Patient or Public contribution. Ten relatives were selected through purposive sampling. In Hungary, the relatives were invited to take part in the study and given information about it by an operational manger. In Sweden, this process was carried out by a dementia nurse. Transcribed content of semistructured interviews was analyzed using a phenomenographic method.

Place, publisher, year, edition, pages
2023. Vol. 2023, article id 4754066
National Category
Nursing
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URN: urn:nbn:se:du-46737DOI: 10.1155/2023/4754066ISI: 001039341800002OAI: oai:DiVA.org:du-46737DiVA, id: diva2:1789289
Available from: 2023-08-18 Created: 2023-08-18 Last updated: 2023-08-18Bibliographically approved

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CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • chicago-author-date
  • chicago-note-bibliography
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
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  • text
  • asciidoc
  • rtf