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Characteristics and Correlates of Perceived Physical and Psychological Health Among Family Caregivers Living With Persons With Advanced Dementia
Rush University College of Nursing, Chicago, IL, USA.ORCID iD: 0000-0003-2211-209X
Dalarna University, School of Health and Welfare, Caring Science/Nursing.ORCID iD: 0000-0002-2729-995x
Yale University, New Haven, CT, USA.
Yale University, New Haven, CT, USA;Karolinska Institutet, Stockholm, Sweden.
2024 (English)In: Western Journal of Nursing Research, ISSN 0193-9459, E-ISSN 1552-8456, Vol. 46, no 2, p. 104-113Article in journal (Refereed) Published
Abstract [en]

Background:

Various factors drive a care setting shift from institutional to home settings for dementia care until the latest stage of the disease, suggesting the critical role of family caregivers living with persons with dementia.

Objectives:

This study explored the characteristics and correlates of self-reported overall physical and psychological (ie, depressive symptoms and stress) health among family caregivers living with persons with dementia in Sweden.

Methods:

This cross-sectional, descriptive study used baseline data from an existing music-based intervention study of persons with dementia and their family caregivers (N = 76). Multivariable linear regression analyses were performed.

Results:

On average, caregivers (n = 38; mean age: 74.8 years) were slightly younger than persons with dementia (n = 38; mean age: 78.6 years). Most caregivers were female (n = 24; 63.2%) and spouses or partners of persons with dementia (n = 37; 97.4%). Caregivers’ perceived relationship with their family members with dementia was the only factor associated with caregivers’ self-reported overall physical health (b = −0.655, p = .046). This suggests caregivers’ more frequent feeling of a good relationship with the persons with dementia was linked to better self-rated physical health among family caregivers living with persons with dementia.

Conclusions:

This study highlights the importance of family caregivers’ perceived relationship with persons with dementia in the context of caregivers’ self-reported physical health. Future research is needed to explore the perceived relationship from the perspectives of persons with dementia and the determinants of caregiving dyads’ (persons with dementia and family caregivers) perceived relationship with each other.

Place, publisher, year, edition, pages
2024. Vol. 46, no 2, p. 104-113
Keywords [en]
dementia, family caregivers, health status, relationship quality
National Category
Nursing
Identifiers
URN: urn:nbn:se:du-47581DOI: 10.1177/01939459231217923ISI: 001127611600001PubMedID: 38112102Scopus ID: 2-s2.0-85180229551OAI: oai:DiVA.org:du-47581DiVA, id: diva2:1822591
Available from: 2023-12-26 Created: 2023-12-26 Last updated: 2025-01-07Bibliographically approved

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Engström, Gabriella

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CiteExportLink to record
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Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
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  • chicago-note-bibliography
  • Other style
More styles
Language
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  • en-GB
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  • nn-NB
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More languages
Output format
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