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"Not only has she survived, but she lives a happy life": a nationwide study on parents' perspective on their child's treatment
Kreicbergs, Ulrika
Louis Dundas Centre, Great Ormond Street Institute of Child Health, University College London, UK..
Landfeldt, Erik
IQVIA.
Sejersen, Thomas
Karolinska University Hospital, Stockholm, Sweden.
Cortina Borja, Mario
UCL Great Ormond Street Institute of Child Health.
Udo, Camilla
Dalarna University, School of Health and Welfare, Social Work.
ORCID iD:
0000-0003-2853-0575
Show others and affiliations
2024 (English)
Conference paper, Poster (with or without abstract) (Refereed)
Place, publisher, year, edition, pages
2024.
National Category
Nursing
Research subject
Research Profiles 2009-2020, Health and Welfare
Identifiers
URN:
urn:nbn:se:du-48166
OAI: oai:DiVA.org:du-48166
DiVA, id:
diva2:1849393
Conference
The 4th Scientific International Congress on SMA in Ghent, 14 – 16 March 2024
Projects
Familjers och personals erfarenheter, överväganden och ställningstaganden avseende nya medicinska möjligheter för barn med spinal muskelatrofi (SMA)
Available from:
2024-04-07
Created:
2024-04-07
Last updated:
2024-04-08
Bibliographically approved
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Udo, Camilla
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http://du.diva-portal.org/smash/record.jsf?pid=diva2:1849393
Cite
Citation style
apa
ieee
modern-language-association-8th-edition
vancouver
chicago-author-date
chicago-note-bibliography
Other style
apa
ieee
modern-language-association-8th-edition
vancouver
chicago-author-date
chicago-note-bibliography
Other style
More styles
Language
de-DE
en-GB
en-US
fi-FI
nn-NO
nn-NB
sv-SE
Other locale
de-DE
en-GB
en-US
fi-FI
nn-NO
nn-NB
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text
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html
text
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