Dalarna University's logo and link to the university's website

du.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • chicago-author-date
  • chicago-note-bibliography
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
The intensity of informal caregiving and its implications for older caregivers: a national survey in Sweden
Aging Research Center, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet and Stockholm University, Solna.
Swedish Family Care Competence Centre (Nka), Kalmar; Department of Health and Caring Sciences, Linnaeus University, Kalmar.
Swedish Family Care Competence Centre (Nka), Kalmar; Department of Health and Caring Sciences, Linnaeus University, Kalmar.
Dalarna University, School of Health and Welfare, Social Work. Aging Research Center, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet and Stockholm University, Solna.ORCID iD: 0000-0002-7685-3216
Show others and affiliations
2025 (English)In: Scandinavian Journal of Public Health, ISSN 1403-4948, E-ISSN 1651-1905, article id 14034948251335113Article in journal (Refereed) Epub ahead of print
Abstract [en]

BACKGROUND: Informal caregiving is a crucial-albeit often invisible-part of the support system that enables older people with chronic diseases, disability, or age-related conditions to live in the community. However, providing informal care can affect caregivers' lives.

AIMS: To explore 1) the level of care intensity among older caregivers, 2) the relationship between the intensity of caregiving and the negative experiences reported by caregivers, and 3) the variations in unmet support needs depending on the intensity of caregiving.

METHODS: Between May and September 2023, we conducted a national representative survey to map informal caregivers in Sweden. A total of 25,776 older adults aged ⩾65 years were sampled. Marginal probabilities were calculated to obtain results adjusted for age, sex, and level of education.

RESULTS: A total of 15,129 people aged ⩾65 years responded to the survey (58.7%), of which 2157 were informal caregivers (14.3%). During a typical week, 68.6% of caregivers provided 1-10 h of informal care, 14.6% provided 11-29 h, and 16.8% provided at least 30 h of care. Women (63.1%) and caregivers aged ⩾75 years (64.1%) were overrepresented in the group providing high-intensity informal care. A higher intensity of care was related to reporting more negative experiences and worse health, as well as to experiencing more unmet support needs.

CONCLUSIONS: While most older informal caregivers reported low-intensity engagement and overall good satisfaction with their situation, a non-negligible fraction provides high-intensity help and has unmet needs that should be addressed by targeted interventions rather than one-size-fits-all policies.

Place, publisher, year, edition, pages
2025. article id 14034948251335113
Keywords [en]
Informal care, aging, caregivers
National Category
Nursing Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
URN: urn:nbn:se:du-50573DOI: 10.1177/14034948251335113ISI: 001479989600001PubMedID: 40312880Scopus ID: 2-s2.0-105004206715OAI: oai:DiVA.org:du-50573DiVA, id: diva2:1956512
Available from: 2025-05-06 Created: 2025-05-06 Last updated: 2025-05-21Bibliographically approved

Open Access in DiVA

fulltext(351 kB)17 downloads
File information
File name FULLTEXT01.pdfFile size 351 kBChecksum SHA-512
683211c8763eb33309bbd211ed9d93de4ef53dbccf8653cd13027edd9db67e11e8faa44260483a2b4a252289f453210d1e83ad1104ba993b49c582bb6f0896a1
Type fulltextMimetype application/pdf

Other links

Publisher's full textPubMedScopus

Authority records

Dahlberg, Lena

Search in DiVA

By author/editor
Dahlberg, Lena
By organisation
Social Work
In the same journal
Scandinavian Journal of Public Health
NursingHealth Care Service and Management, Health Policy and Services and Health Economy

Search outside of DiVA

GoogleGoogle Scholar
Total: 20 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 82 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • chicago-author-date
  • chicago-note-bibliography
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf