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Caring for dying children in an acute paediatric ward
Dalarna University, School of Health and Social Studies, Caring Science/Nursing.
Mälardalen university, Sweden.
Dalarna University, School of Health and Social Studies, Caring Science/Nursing.ORCID iD: 0000-0003-1169-2172
2013 (English)Conference paper, Poster (Other academic)
Abstract [en]

Introduction

Swedish acute paediatric wards usually focuses on children with urgent and short-time illnesses and the care is not always suited for a dying child. Caring for dying children in this context therefor faces special challenges and needs to be further investigated through research from the health care professionals´ (HCP) perspective.

 

Purpose

The aim was to describe caring as presented in professional caregivers’ experiences of caring for dying children in paediatric ward.

 

Material

Four HCP in a paediatric ward, which had been caring for at least one dying child during the last five years, participated.

 

Methods

A phenomenological approach was chosen using qualitative in-depth interviews, starting with one opening question, continuing with follow-up questions according to responsive listening. Data were analysed following four steps suggested by Giorgi: reading to capture the global sense, constitution of parts into ‘meaning units’, transformation from implicit meaning to explicit constituents and gaining structure.

 

Results

The findings are represented in five constituents. Presence is a prerequisite for caring when a child is dying. Self-knowledge and support from others are suggested to help when the HCP is suffering and struggling with the injustice in dying. The essence of caring for dying children is like a musical attuned composition. The moments are vulnerable and could easily be disrupted and turn into disharmony.

 

Conclusions

The HCP needs self-knowledge to be true and sensitive in the perceived situation of injustice when caring for dying children and their families. Caring assumes presence; however, caring for dying children is found to mean suffering to HCP and raises the need for support from others.

Place, publisher, year, edition, pages
2013.
National Category
Nursing
Research subject
Hälsa och välfärd
Identifiers
URN: urn:nbn:se:du-13521OAI: oai:DiVA.org:du-13521DiVA: diva2:679222
Conference
2nd PNAE Congress on Paediatric Nursing, 7th-8th June 2013, Glasgow, United Kingdom
Available from: 2013-12-13 Created: 2013-12-13 Last updated: 2014-09-08Bibliographically approved

Open Access in DiVA

Poster; Caring for dying children(7226 kB)17 downloads
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CiteExportLink to record
Permanent link

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Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • chicago-author-date
  • chicago-note-bibliography
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf