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  • 1.
    Forsner, Maria
    et al.
    Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing.
    Berggren, Jenny
    Masaba, Jennipher
    Ekbladh, Annelie
    Children's and Youths' Clinic, Central Lasarettet, Växjö, Sweden.
    Lindholm Olinder, Anna
    Department of Clinical Science and Education, Karolinska Institute, Södersjukhuset, Stockholm, Sweden; Uppsala University, Department of Medical Sciences, Akademiska Sjukhuset, Uppsala, Sweden.
    Parents’ experiences of caring for a child younger than two years of age treated with continuous subcutaneous insulin infusion2014In: European Diabetes Nursing, ISSN 1551-7853, E-ISSN 1551-7861, Vol. 11, no 1, p. 7-12Article in journal (Refereed)
    Abstract [en]

    Diabetes during infancy is uncommon and continuous subcutaneous insulin infusion (CSII) is the recommended treatment with such young children. However, this form of treatment has not been investigated previously from the perspective of the parents.

    The aim of this study was to determine parents' experiences of caring for a child less than two years old who had diabetes mellitus and was being treated with CSII therapy.

    Three pairs of parents were interviewed twice to elucidate their views on the initial period and on daily living. Data were submitted to qualitative content analysis and resulted in seven categories and one theme, the latter being: ‘The diabetes disease was threatening our baby's life, but then the insulin pump came as a rescuing, though challenging, angel’. Parents initially felt life had been turned upside down, but later they felt in control nearly all the time.

    It was concluded that parents of infants with diabetes are in great need of support in order to manage the disease and CSII technology. The fear of losing control and the lack of relief lead to social isolation. Educating someone close to the family could be a valuable intervention.

  • 2.
    Graue, Marit
    et al.
    University college, Norway.
    Iversen, Marjolein
    University college, Norway.
    Sigurdadottir, Arun
    university of Akureyri.
    Zoffmann, Vibeke
    Diabetes Centre, Gentofte, Denmark.
    Leksell, Janeth
    Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing.
    Diabetes research reported by nurses in Nordic countries2013In: European Diabetes Nursing, ISSN 1551-7853, E-ISSN 1551-7861, Vol. 10, no 2, p. 46-51Article in journal (Refereed)
    Abstract [en]

    Background: New knowledge from research studies is important as a foundation for high quality care in practice as well as crucial to further stimulate research in the future.

    Aim: To determine the total number of peer-reviewed articles on diabetes research reported by nurses in four Nordic countries (Denmark, Iceland, Norway and Sweden) from 1979 to 2009. Furthermore we wanted to identify the time periods in which they had been published, different study designs and number of publications related to nurse authors.

    Methods: We performed an electronic search for potentially relevant scientific articles between January 1, 1979 and December 31, 2009 using the MEDLINE, Medline in process, EMBASE, CINAHL, PsycINFO and Cochrane databases. The studies focused either on the diabetes population or diabetes health care professionals.

    Results: We included 164 scientific articles; 132 resulting from electronic search and 32 from manual search. They were published in 63 different scientific journals, with 52 (32%) published in nursing journals and typically by authors with university degrees. Only one of four authors had published five or more articles. The majority of the studies originated from a single country, with 23 (14%) including co-authors from another country.

    Conclusion: Research in diabetes reported by nurses has increased considerably after year 2000. Further action is needed to build stronger national network groups of researchers in diabetes nursing that would benefit from international collaborative research networks and facilitate funding opportunities.

  • 3.
    Leksell, Janeth
    et al.
    Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing.
    Sandberg, Gun
    Wikblad, Karin
    Experiences of an educational programme for individuals with blindness caused by diabetes2006In: European Diabetes Nursing, ISSN 1551-7853, E-ISSN 1551-7861, Vol. 3, no 2, p. 86-91Article in journal (Refereed)
    Abstract [en]

    Background: Individuals with blindness caused by diabetes face problems in their daily life that are related to both conditions. Hopefully some of these problems can be solved and simplified through a suitable educational programme. Aims: The aim of this study was to evaluate whether the educational programme 'I'm the boss' is suitable for blind individuals with diabetes, and to discover whether and how the programme inspired the participants in developing self-management skills. Methods: An ophthalmologic centre and two medical centres in a well-defined geographic area were screened for blind individuals with diabetes, resulting in the participation of nine individuals in the educational programme. The programme consisted of six three-hour-long weekly sessions based on empowerment and problem-based learning. Empowerment was measured using the Swedish version of the diabetes empowerment scale (Swe-DES-23). After completion of the programme, the participants were interviewed (focus group and individual interviews). The interviews were analysed using qualitative content analysis. Findings: The evaluation of the educational programme showed that almost half the participants improved their diabetes empowerment in the subscales self-awareness and ability to manage stress. The qualitative data corresponded well with the quantitative data in terms of increasing participants' self-efficacy and knowledge. The learning process was experienced as flexible and the content as stimulating and creative. Conclusion: It is concluded that the programme seems suitable for blind individuals with diabetes, and in collaboration with others allows space for innovation and self-realisation.

  • 4. Lindmark, Anna
    et al.
    Smide, Bibbi
    Leksell, Janeth
    Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing.
    Perception of healthy lifestyle information in women with gestational diabetes2010In: European Diabetes Nursing, ISSN 1551-7853, E-ISSN 1551-7861, Vol. 7, no 1Article in journal (Refereed)
    Abstract [en]

    Background: Pregnant women with gestational diabetes mellitus (GDM) need information about the increased risk of developing type 2 diabetes mellitus (T2DM) in later life. Aims: To investigate how women with GDM perceived information about this condition during pregnancy; to explore their opinions on healthcare provision up to one year after delivery; to investigate their perceptions about lifestyle a year after delivery. Methods: Ten women were interviewed using a semi-structured guide. Data were analysed using content analysis. Questions included reactions to receiving the diagnosis and perceptions about information given during pregnancy and current health. Results: Six of the women perceived that information given had been too sparse; the remaining four considered it useful to learn about the risk of developing T2DM in later life. Written information about GDM was considered very brief or non-existent. Care received after delivery was perceived to be positive. Group meetings arranged up to one year after childbirth were appreciated by all attendees. At these meetings, recommendations were given regarding food and physical exercise, but no follow-up was arranged to encourage more permanent lifestyle changes. Conclusion: Opportunities for women with GDM to meet others with the condition and receive specialist support need to be maximised, so that these women can become more knowledgeable and be encouraged to change their lifestyle. This may help prevent or delay the onset of T2DM.

  • 5.
    Olsen, Marie
    et al.
    Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing.
    Granath, Annelie
    Wharén, Pia
    Blom, Tammy
    Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing.
    Leksell, Janeth
    Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing.
    Perceived knowledge about diabetes among personnel in municipal care: a qualitative focus group interview study2012In: European Diabetes Nursing, ISSN 1551-7853, E-ISSN 1551-7861, Vol. 9, no 2, p. 52-55Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to explore the perceived knowledge of diabetes among personnel practising in municipal care.

    The study was conducted using a qualitative approach through focus group interviews. The study included focus group interviews on three occasions, with a total of 22 enrolled nurses (ENs).

    The results showed that the ENs' perceived knowledge of diabetes was not optimal. However, the study findings demonstrated that the ENs felt they had sufficient knowledge of nursing interventions, especially in the prevention of foot complications. Nevertheless, they expressed feelings of insecurity about assessing symptoms, treatment, and interventions to be taken with high or low blood glucose levels.

    When providing opportunities for educating ENs prior to delegating to them the task of insulin administration, the training sessions should be structured and led by a diabetes nurse with pedagogical skills. It is important that the registered nurses who teach have up-to-date knowledge concerning developments and research in diabetes care.

    The results of the study show that ENs employed within municipal health care lack knowledge regarding the care of older people with type 2 diabetes. Therefore, it is essential that ENs receive structured education and training in diabetes in order to ensure good and safe diabetes care. Copyright © 2012 FEND. Published by John Wiley & Sons, Ltd

  • 6. Saarinen, Tuula
    et al.
    Fernström, Lillemor
    Brorsson, Anna Lena
    Karolinska Institutet.
    Lindholm Olinder, Anna
    Uppsala universitet, Institutionen för medicinska vetenskaper.
    Insulin pump therapy is perceived as liberating, but to many it can imply a sense of the diabetes made visible2014In: European Diabetes Nursing, ISSN 1551-7853, E-ISSN 1551-7861, Vol. 11, no 2, p. 38-42Article in journal (Refereed)
    Abstract [en]

    This study describes how adults with type 1 diabetes experience the transition from multiple daily injections (MDI) to continuous subcutaneous insulin infusion (CSII or ‘insulin pump’). The study is based on interviews in focus groups, with 11 persons with type 1 diabetes who had had CSII for at least one year, which were analysed using qualitative content analysis. The analysis resulted in three categories: life and health; involvement of others; and technology dependence. Participants' experiences are summarised in the theme ‘CSII is perceived as liberating, but also implies a sense of the diabetes made visible’. The transition resulted in changed life and health with greater freedom and flexibility, particularly in meal situations. The participants felt that their blood glucose was easier to control. Those around them reacted with curiosity, but some participants felt compelled to tell others that they had diabetes since the pump could be seen or heard. The participants found that coping with CSII in daily life was easier and more comfortable than they had expected. However, having to constantly be prepared for technical failure was experienced as cumbersome. All participants indicated that they were satisfied with their treatment and recommended it to others. Transition to CSII may be experienced as liberating, but might also imply a sense of the diabetes made visible. The results can be used in clinical practice, when advising about CSII. Being aware of both positive and negative experiences with CSII can contribute to better care for those already being treated with CSII.

  • 7. Wikblad, K
    et al.
    Leksell, Janeth
    Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing.
    Smide, B
    'I'm the boss' testing the feasibility of an evidence-based patient education programme using problem-based learning2004In: European Diabetes Nursing, ISSN 1551-7853, E-ISSN 1551-7861, no 1, p. 1-5Article in journal (Refereed)
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