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  • 1.
    Eeg-Olofsson, Katarina
    et al.
    Department of Molecular and Clinical Medicine, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; Sahlgrenska University Hospital, Gothenburg, Sweden.
    Svedbo Engström, Maria
    Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing. Department of Molecular and Clinical Medicine, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
    Borg, Sixten
    Lund University, Department of Clinical Sciences in Malmö, Health Economics Unit, Medicon Village, Lund, Sweden.
    Palaszewski, Bo
    Region Västra Götaland, Department of Data Management and Analysis, Gothenburg, Sweden.
    Leksell, Janeth
    Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing. Uppsala University.
    Johansson, Unn-Britt
    Sophiahemmet University, Stockholm, Sweden; Karolinska Institutet, Department of Clinical Sciences and Education, Södersjukhuset, Stockholm, Sweden.
    Gudbjörnsdottir, Soffia
    Department of Molecular and Clinical Medicine, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; Register Center Västra Götaland, Gothenburg, Sweden.
    Glycaemic control and Patient-Reported Outcome Measures (PROMs) in type 1 diabetes2016Conference paper (Refereed)
  • 2.
    Svedbo Engström, Maria
    et al.
    Dalarna University, School of Health and Welfare, Caring Science/Nursing.
    Johansson, Unn-Britt
    Sophiahemmet University, Stockholm, Sweden; Karolinska Institutet, Department of Clinical Sciences and Education, Södersjukhuset, Stockholm, Sweden.
    Leksell, Janeth
    Uppsala University.
    Linder, Ebba
    Eeg-Olofsson, Katarina
    Department of Molecular and Clinical Medicine, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; Sahlgrenska University Hospital, Gothenburg, Sweden; Registercentrum Västra Götaland.
    Ny artikel om Diabetesenkäten – Nya förhållningssätt och vidgade perspektiv2022In: Diabetesvård – Tidning för Svensk Förening för Sjuksköterskor i Diabetesvård, ISSN 1652-697X, no 2, p. 19-19Article in journal (Other (popular science, discussion, etc.))
  • 3.
    Svedbo Engström, Maria
    et al.
    Dalarna University, School of Health and Welfare, Caring Science/Nursing. Centrum för Klinisk Forskning Dalarna - Uppsala universitet.
    Johansson, Unn-Britt
    Sophiahemmet University, Stockholm, Sweden; Karolinska Institutet, Department of Clinical Sciences and Education, Södersjukhuset, Stockholm, Sweden.
    Linder, Ebba
    Registercentrum Västra Götaland, Nationella Diabetesregistret.
    Leksell, Janeth
    Dalarna University, School of Health and Welfare, Caring Science/Nursing. Uppsala University.
    Eeg-Olofsson, Katarina
    Department of Molecular and Clinical Medicine, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; Sahlgrenska University Hospital, Gothenburg, Sweden.
    Att implementera Diabetesenkäten som kliniskt verktyg i diabetesvården: erfarenheter från patienter, diabetessjuksköterskor och läkare2021Conference paper (Refereed)
  • 4.
    Svedbo Engström, Maria
    et al.
    Dalarna University, School of Health and Welfare, Caring Science/Nursing.
    Johansson, Unn-Britt
    Sophiahemmet högskola, Karolinska Institutet.
    Linder, Ebba
    Registercentrum Vägstra Götaland.
    Leksell, Janeth
    Uppsala universitet.
    Eeg-Olofsson, Katarina
    Göteborgs universitet, Sahlgrenska universitetssjukhuset, Registercentrum Västra Götaland.
    Initiating the digital Diabetes Questionnaire as a clinical tool in routine diabetes care: Patients’ and professionals’ perspectives captured in focus group discussions2021Conference paper (Refereed)
  • 5.
    Svedbo Engström, Maria
    et al.
    Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing. Department of Molecular and Clinical Medicine, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
    Leksell, Janeth
    Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing. Uppsala University.
    Johansson, Unn-Britt
    Sophiahemmet University, Stockholm, Sweden; Karolinska Institutet, Department of Clinical Sciences and Education, Södersjukhuset, Stockholm, Sweden.
    Borg, Sixten
    Lund University, Department of Clinical Sciences in Malmö, Health Economics Unit, Medicon Village, Lund, Sweden.
    Palaszewski, Bo
    Region Västra Götaland, Department of Data Management and Analysis, Gothenburg, Sweden.
    Franzén, Stefan
    Register Center Västra Götaland, Gothenburg, Sweden.
    Gudbjörnsdottir, Soffia
    Department of Molecular and Clinical Medicine, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; Register Center Västra Götaland, Gothenburg, Sweden.
    Eeg-Olofsson, Katarina
    Department of Molecular and Clinical Medicine, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; Sahlgrenska University Hospital, Gothenburg, Sweden.
    A new diabetes questionnaire to add patients’ perspectives to diabetes care: A nationwide cross-sectional study among adults with type 1 and type 2 diabetes.2019Conference paper (Refereed)
  • 6.
    Svedbo Engström, Maria
    et al.
    Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing. Department of Molecular and Clinical Medicine, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
    Leksell, Janeth
    Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing. Uppsala University.
    Johansson, Unn-Britt
    Sophiahemmet University, Stockholm, Sweden; Karolinska Institutet, Department of Clinical Sciences and Education, Södersjukhuset, Stockholm, Sweden.
    Borg, Sixten
    Lund University, Department of Clinical Sciences in Malmö, Health Economics Unit, Medicon Village, Lund, Sweden.
    Palaszewski, Bo
    Region Västra Götaland, Department of Data Management and Analysis, Gothenburg, Sweden.
    Franzén, Stefan
    Register Center Västra Götaland, Gothenburg, Sweden.
    Gudbjörnsdottir, Soffia
    Department of Molecular and Clinical Medicine, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; Register Center Västra Götaland, Gothenburg, Sweden.
    Eeg-Olofsson, Katarina
    Department of Molecular and Clinical Medicine, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; Sahlgrenska University Hospital, Gothenburg, Sweden.
    New diabetes questionnaire to add patients’ perspectives to diabetes care for adults with type 1 and type 2 diabetes – Nationwide cross-sectional study of construct validity assessing associations with generic health-related quality of life and clinical variables2020In: BMJ Open, E-ISSN 2044-6055, Vol. 10, no 11, article id e038966Article in journal (Refereed)
    Abstract [en]

    Objectives To study evidence for construct validity, the aim was to describe the outcome from the recently developed Diabetes Questionnaire, assess the associations of that outcome with clinical variables and generic health-related quality of life, and study the sensitivity to differences between clinically relevant groups of glycaemic control in adults with type 1 and type 2 diabetes in a nation-wide setting.

    Design Cross-sectional survey.

    Setting Swedish diabetes care clinics connected to the National Diabetes Register (NDR).

    Participants Among 2479 adults with type 1 diabetes and 2469 with type 2 diabetes selected at random from the NDR, 1373 (55.4%) with type 1 and 1353 (54.8%) with type 2 diabetes chose to participate.

    Outcome measures The Diabetes Questionnaire, the generic 36-item Short Form version 2 (SF-36v2) health survey and clinical variables.

    Results Related to the prespecified assumptions, supporting evidence for construct validity for the Diabetes Questionnaire was found. Supporting divergent validity, the statistically significant correlations with the clinical variables were few and weak. In relation to the SF-36v2 and in support of convergent validity, the strongest correlations were seen in the Diabetes Questionnaire scales General Well-being and Mood and Energy. In those scales, machine learning analyses showed that about 40%–45% of the variance was explained by the SF-36v2 results and clinical variables. In multiple regression analyses among three groups with differing levels of glycated haemoglobin adjusted for demographics, other risk factors, and diabetes complications, the high-risk group had, in support of sensitivity to clinically relevant groups, statistically significant lower scores than the well-controlled group in most Diabetes Questionnaire scales.

    Conclusions This nation-wide study shows that the Diabetes Questionnaire captures some generic health-related quality-of-life dimensions, in addition to adding diabetes-specific information not covered by the SF-36v2 and clinical variables. The Diabetes Questionnaire is also sensitive to differences between clinically relevant groups of glycaemic control.

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