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Publications (10 of 72) Show all publications
Udo, C., Sejersen, T. & Kreicbergs, U. (2024). Experiences of family members of children with spinal muscular atrophy during the Covid-19 pandemic. In: : . Paper presented at The 4th Scientific International Congress on SMA in Ghent 14 – 16 March 2024.
Open this publication in new window or tab >>Experiences of family members of children with spinal muscular atrophy during the Covid-19 pandemic
2024 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Nursing
Research subject
Health and Welfare, Familjers och personals erfarenheter, överväganden och ställningstaganden avseende nya medicinska möjligheter för barn med spinal muskelatrofi (SMA)
Identifiers
urn:nbn:se:du-48165 (URN)
Conference
The 4th Scientific International Congress on SMA in Ghent 14 – 16 March 2024
Projects
Familjers och personals erfarenheter, överväganden och ställningstaganden avseende nya medicinska möjligheter för barn med spinal muskelatrofi (SMA)
Available from: 2024-04-07 Created: 2024-04-07 Last updated: 2024-04-08Bibliographically approved
Kreicbergs, U., Landfeldt, E., Sejersen, T., Cortina Borja, M. & Udo, C. (2024). "Not only has she survived, but she lives a happy life": a nationwide study on parents' perspective on their child's treatment. In: : . Paper presented at The 4th Scientific International Congress on SMA in Ghent, 14 – 16 March 2024.
Open this publication in new window or tab >>"Not only has she survived, but she lives a happy life": a nationwide study on parents' perspective on their child's treatment
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2024 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Nursing
Research subject
Health and Welfare, Familjers och personals erfarenheter, överväganden och ställningstaganden avseende nya medicinska möjligheter för barn med spinal muskelatrofi (SMA)
Identifiers
urn:nbn:se:du-48166 (URN)
Conference
The 4th Scientific International Congress on SMA in Ghent, 14 – 16 March 2024
Projects
Familjers och personals erfarenheter, överväganden och ställningstaganden avseende nya medicinska möjligheter för barn med spinal muskelatrofi (SMA)
Available from: 2024-04-07 Created: 2024-04-07 Last updated: 2024-04-08Bibliographically approved
Petersson, E.-L., Törnbom, K., Björkelund, C., Jerlock, M., Hange, D., Udo, C. & Svenningsson, I. (2024). Process evaluation of the CO-WORK-CARE model: Collaboration and a person-centred dialogue meeting for patients with common mental disorder in primary health care. Scandinavian Journal of Caring Sciences
Open this publication in new window or tab >>Process evaluation of the CO-WORK-CARE model: Collaboration and a person-centred dialogue meeting for patients with common mental disorder in primary health care
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2024 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712Article in journal (Refereed) Epub ahead of print
Abstract [en]

Rationale: To ensure optimal patient care based on evidence, it is crucial to understand how to implement new methods in practice. However, intervention studies often overlook parts of the implementation process. A comprehensive process evaluation is necessary to understand why interventions succeed or fail in specific contexts and to integrate new knowledge into daily practice. This evaluation examines the full implementation of the Co-Work-Care model in Swedish primary healthcare to identify strengths and weaknesses. 

Aim: This study aimed to evaluate the process of implementing the CO-WORK-CARE model that focuses on close collaboration and the use of a person-centred dialogue meeting in primary healthcare for patients on sick leave due to common mental disorders. 

Method: The CO-WORK-CARE model emphasises collaboration among the GP, rehabilitation coordinator and care manager, along with person-centred dialogue meetings involving employers. Following UK Medical Research Council guidelines, we conducted a process evaluation. Data from previous studies were reanalysed. We also analysed field notes and meeting notes using Malterud's qualitative method. 

Results: The evaluation identified key facilitators for model implementation, including regular visits by facilitators and guidance from the research physician. Peer support meetings also bolstered implementation. However, challenges emerged due to conflicts with existing structures and limitations in person-centred dialogue meetings. 

Conclusion: Adapting the CO-WORK-CARE model to Swedish primary care is feasible and beneficial, with collaboration among the care manager, rehabilitation coordinator and GP and person-centred dialogue meetings. Thorough preparations, ongoing facilitator and peer support and integrated information enhanced implementation efficiency, despite challenges posed by existing structures. 

Keywords
collaboration, common mental disorders, CO-WORK-CARE model, implementation, primary care, process evaluation, sick leave
National Category
General Practice Health Care Service and Management, Health Policy and Services and Health Economy
Research subject
Health and Welfare, Care Manager - Vårdsamordnare som spindeln i nätet för patienter med depression i primärvården
Identifiers
urn:nbn:se:du-48338 (URN)10.1111/scs.13268 (DOI)001217331100001 ()38718100 (PubMedID)2-s2.0-85192395105 (Scopus ID)
Available from: 2024-04-20 Created: 2024-04-20 Last updated: 2024-05-24Bibliographically approved
Thermaenius, I., Udo, C., Alvariza, A., Lundberg, T., Holm, M. & Lövgren, M. (2024). The Family Talk Intervention Among Families Affected by Severe Illness: Hospital Social Workers' Experiences of Facilitators and Barriers to its Use in Clinical Practice.. Journal of Social Work in End-of-Life & Palliative Care, 1-19
Open this publication in new window or tab >>The Family Talk Intervention Among Families Affected by Severe Illness: Hospital Social Workers' Experiences of Facilitators and Barriers to its Use in Clinical Practice.
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2024 (English)In: Journal of Social Work in End-of-Life & Palliative Care, ISSN 1552-4256, E-ISSN 1552-4264, p. 1-19Article in journal (Refereed) Epub ahead of print
Abstract [en]

Hospital social workers (HSW) play an important role in health care, providing psychosocial support to families affected by severe illness, and having palliative care needs involving dependent children. However, there are few evidence-based family interventions for HSWs to apply when supporting these families. The Family Talk intervention (FTI), a psychosocial family-based intervention, was therefore evaluated in an effectiveness-implementation study. Within the study, HSWs were educated and trained in the use of FTI in clinical practice. This study examined HSWs' experiences of barriers and facilitating factors during their initial use of FTI in clinical practice. Altogether, 10 semi-structured focus groups were held with HSWs (n = 38) employed in cancer care and specialized palliative home care for adults, pediatric hospital care, and a children's hospice. Data were analyzed using content analysis. HSWs considered FTI to be a suitable psychosocial intervention for families affected by severe illness with dependent children. However, the way in which the care was organized acted either as a barrier or facilitator to the use of FTI, such as the HSWs' integration in the team and their possibility to organize their own work. The HSWs' work environment also impacted the use of FTI, where time and support from managers was seen as a significant facilitating factor, but which varied between the healthcare contexts. In conclusion, HSWs believed that FTI was a suitable family intervention for families involving dependent children where one family member had a severe illness. For successful initial implementation, strategies should be multi-functional, targeting the care organization and the work environment.

Keywords
Hospital social worker, implementation, psychosocial intervention
National Category
Nursing Sociology
Identifiers
urn:nbn:se:du-49013 (URN)10.1080/15524256.2024.2364589 (DOI)38968160 (PubMedID)
Available from: 2024-07-09 Created: 2024-07-09 Last updated: 2024-07-09Bibliographically approved
Ayoub, M., Udo, C., Årestedt, K., Kreicbergs, U. & Lövgren, M. (2024). The Family Talk Intervention in Pediatric Oncology: Potential Effects Reported by Parents. Children, 11(1), 95-95
Open this publication in new window or tab >>The Family Talk Intervention in Pediatric Oncology: Potential Effects Reported by Parents
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2024 (English)In: Children, E-ISSN 2227-9067, Vol. 11, no 1, p. 95-95Article in journal (Refereed) Published
National Category
Pediatrics Social Work
Identifiers
urn:nbn:se:du-47806 (URN)10.3390/children11010095 (DOI)001149200800001 ()38255408 (PubMedID)2-s2.0-85183422756 (Scopus ID)
Available from: 2024-01-15 Created: 2024-01-15 Last updated: 2024-06-14Bibliographically approved
Sandegärd, M. & Udo, C. (2023). Existentiella samtal inom hälso- och sjukvård: Kuratorers erfarenheter av samtal om döden. Socialmedicinsk Tidskrift, 100(1), 88-96
Open this publication in new window or tab >>Existentiella samtal inom hälso- och sjukvård: Kuratorers erfarenheter av samtal om döden
2023 (Swedish)In: Socialmedicinsk Tidskrift, ISSN 0037-833X, Vol. 100, no 1, p. 88-96Article in journal (Refereed) Published
National Category
Social Work
Identifiers
urn:nbn:se:du-45191 (URN)
Available from: 2023-01-20 Created: 2023-01-20 Last updated: 2023-09-21Bibliographically approved
Landfeldt, E., Udo, C., Lövgren, M., Sejersen, T. & Kreicbergs, U. (2023). Health-related quality of life of children with spinal muscular atrophy in Sweden: A prospective cohort study in the era of disease-modifying therapy. European journal of paediatric neurology, 46, 67-73
Open this publication in new window or tab >>Health-related quality of life of children with spinal muscular atrophy in Sweden: A prospective cohort study in the era of disease-modifying therapy
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2023 (English)In: European journal of paediatric neurology, ISSN 1090-3798, E-ISSN 1532-2130, Vol. 46, p. 67-73Article in journal (Refereed) Published
Abstract [en]

The objective of this study was to estimate change over time in health-related quality of life (HRQoL) of children with spinal muscular atrophy (SMA) in Sweden. Children with SMA were identified via the National Patient Register by the National Board of Health and Welfare in Sweden. Patient HRQoL was caregiver proxy-assessed using the Pediatric Quality of Life Inventory 4.0 Generic Core Scales at baseline, as well as at 6, 12, and 18 months of follow-up. Results were stratified by SMA type. Mothers and fathers to 27 children with SMA (mean patient age: 9.17 years; 59% female) participated in the study. All patients received disease-modifying therapy. At baseline, across SMA types, the mean total score was estimated at between 52.68 and 59.19, Physical Functioning score at between 26.39 and 40.34, Emotional Functioning score at between 66.82 and 68.57, Social Functioning score at between 55.00 and 70.45, and School Functioning score at between 70.45 and 78.33. The mean annual total score change was estimated at −2.03 for SMA type I, 4.11 for SMA type II, and 1.12 for SMA type III. In conclusion, we show that SMA has a detrimental impact on HRQoL that extends above and beyond somatic disability. Children with SMA type II experienced a dramatic increase in HRQoL over time, predominantly related to improvement in physical and social functioning. Our data helps quantify the patient burden of disease and adds to the rapidly expanding body of evidence of the effectiveness of recently approved disease-modifying therapies for SMA. © 2023 European Paediatric Neurology Society

Keywords
Burden; Health; Neuromuscular disease; Nusinersen; Quality of life; Risdiplam; Well-being
National Category
Nursing
Research subject
Health and Welfare, Familjers och personals erfarenheter, överväganden och ställningstaganden avseende nya medicinska möjligheter för barn med spinal muskelatrofi (SMA)
Identifiers
urn:nbn:se:du-46457 (URN)10.1016/j.ejpn.2023.06.008 (DOI)001045017000001 ()37473536 (PubMedID)2-s2.0-85164996326 (Scopus ID)
Available from: 2023-07-14 Created: 2023-07-14 Last updated: 2023-08-24Bibliographically approved
Eneslätt, M., Ayoub, M., Udo, C., Kreicbergs, U. & Lövgren, M. (2023). Mål och innehåll i samtal med familjer  inom stödprogrammet Family Talk Intervention i barnonkologi. In: : . Paper presented at Nationella konferensen i palliativ vård 2023, Malmö 2-4 oktober 2023.
Open this publication in new window or tab >>Mål och innehåll i samtal med familjer  inom stödprogrammet Family Talk Intervention i barnonkologi
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2023 (Swedish)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Nursing
Research subject
Health and Welfare, Ett familjebaserat stödprogram till barnfamiljer där en förälder eller ett barn har svår sjukdom
Identifiers
urn:nbn:se:du-46946 (URN)
Conference
Nationella konferensen i palliativ vård 2023, Malmö 2-4 oktober 2023
Available from: 2023-10-03 Created: 2023-10-03 Last updated: 2023-10-03Bibliographically approved
Ayoub, M., Udo, C. & Randell, E. (2023). Promoting social engagement for young adults living in social isolation in Sweden: Social workers and health care professionals’ perceptions of success factors. Nordic Social Work Research (1), 63-75
Open this publication in new window or tab >>Promoting social engagement for young adults living in social isolation in Sweden: Social workers and health care professionals’ perceptions of success factors
2023 (English)In: Nordic Social Work Research, ISSN 2156-857X, E-ISSN 2156-8588, no 1, p. 63-75Article in journal (Refereed) Published
Keywords
collaboration, empowerment, integrated interventions, NEET, social withdrawal
National Category
Social Work
Identifiers
urn:nbn:se:du-37441 (URN)10.1080/2156857X.2021.1946710 (DOI)001026167500006 ()2-s2.0-85148452159 (Scopus ID)
Available from: 2021-06-20 Created: 2021-06-20 Last updated: 2023-08-07Bibliographically approved
Högsnes, M., Grim, K., Udo, C., Ullsten, A. & Landstedt, E. (2023). Psychosocial support in healthcare settings from the perspective of persons with acquired brain injury (ABI) and their relatives. In: : . Paper presented at HÅLLBARHETENS TEMPORALITET, Centrum för forskning om hållbar samhällsförändring, CRS..
Open this publication in new window or tab >>Psychosocial support in healthcare settings from the perspective of persons with acquired brain injury (ABI) and their relatives
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2023 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Social Work
Identifiers
urn:nbn:se:du-47339 (URN)
Conference
HÅLLBARHETENS TEMPORALITET, Centrum för forskning om hållbar samhällsförändring, CRS.
Available from: 2023-12-05 Created: 2023-12-05 Last updated: 2023-12-05Bibliographically approved
Projects
The Family Talk Intervention in clinical practice when a parent with dependent children or a child is severely ill: An effectiveness-implementation study [2021-00999_VR]; Marie Cederschiöld University; Publications
Eneslätt, M., Ayoub, M., Udo, C., Kreicbergs, U. & Lövgren, M. (2023). Mål och innehåll i samtal med familjer  inom stödprogrammet Family Talk Intervention i barnonkologi. In: : . Paper presented at Nationella konferensen i palliativ vård 2023, Malmö 2-4 oktober 2023. Thermaenius, I., Udo, C., Alvariza, A., Lundberg, T., Holm, M., Kreicbergs, U. & Lövgren, M. (2023). The Family Talk Intervention för barnfamiljer med palliativa vårdbehov: Hälso- och sjukvårdskuratorers initiala erfarenheter av hinder och möjligheter i användandet av interventionen. In: : . Paper presented at Nationella konferensen i palliativ vård 2023, Malmö, Sverige, 2-4 oktober 2023.
Barn delar med sig av hur det är att leva med svår sjukdomPsykosocialt stöd och kuratorers arbete inom hälso- och sjukvård
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0003-2853-0575

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