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Spouse’s supported and unsupported care of persons with dementia: Home care and the informal caregiver’s perspective
Dalarna University, School of Health and Welfare, Care Sciences. The Swedish National Graduate School for Competitive Science on Ageing and Health.ORCID iD: 0000-0002-8480-190x
Dalarna University, School of Health and Welfare, Social Work.ORCID iD: 0000-0002-8795-7555
Dalarna University, School of Health and Welfare, Social Work.ORCID iD: 0000-0002-7685-3216
Florida Atlantic University Christine E Lynn College of Nursing.ORCID iD: 0000-0003-3740-6138
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2021 (English)Conference paper, Oral presentation only (Refereed)
Abstract [en]

Introduction. Caring for a person with dementia (PWD) can negatively affect the quality of life of informal carers, and research suggests spouse carers, often being older, are particularly vulnerable and requiring of support. Yet the formal support offered is rarely tailored to meet the needs of spouse carers of PWDs. The aim of the present study was to compare spouse carers to other carers of PWDs on a range of factors, as a foundation for a better understanding of their support needs. 

Material and methods. Cross-sectional survey. In late 2018 a random stratified sample was taken of the Swedish population aged 18 and older. Of 30,009 people contacted, 11,168 completed and returned a questionnaire or completed a web-based version, a response rate of 37.3%. The questionnaire contained questions on whether the respondent was an informal carer for another person, the extent of care provided, contact with and support received from formal services, and impacts of care.

Results. Of the respondents, 378 (3.38%) were carers of PWDs, of whom 107 (28.3%) were spouse carers. Spouse carers compared to other carers of PWD provide care more intenselyand are more informed on their right to support from local authorities. While more often being offered formal support in their carer role, they are less supported in providing care and report a higher negative impact (for all p<.05). 

Conclusions. Formal support is offered to spouse carers in their carer role, but might not be tailored to their specific needs of support.

Place, publisher, year, edition, pages
2021.
National Category
Gerontology, specialising in Medical and Health Sciences
Research subject
Health and Welfare, Identifiering och utveckling av stöd för att möta behov hos personer som vårdar en sammanboende partner med demens
Identifiers
URN: urn:nbn:se:du-38842OAI: oai:DiVA.org:du-38842DiVA, id: diva2:1613681
Conference
NKG 25 Nordic Gerontology Congress, online June 2-4 2021
Funder
The Kamprad Family Foundation, 20180191Available from: 2021-11-23 Created: 2021-11-23 Last updated: 2023-04-14Bibliographically approved

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Falk Johansson, MarcusMcKee, KevinDahlberg, LenaMarmstål Hammar, Lena

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Falk Johansson, MarcusMcKee, KevinDahlberg, LenaWilliams, Christine L.Martina, Summer MeraniusMarmstål Hammar, Lena
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Gerontology, specialising in Medical and Health Sciences

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CiteExportLink to record
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