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Negative Impact and Positive Value of Caregiving in Spouse Carers of Persons With Dementia in Sweden
Dalarna University, School of Health and Welfare, Care Sciences.ORCID iD: 0000-0002-8480-190x
Dalarna University, School of Health and Welfare, Social Work.ORCID iD: 0000-0002-8795-7555
Dalarna University, School of Health and Welfare, Social Work.ORCID iD: 0000-0002-7685-3216
Mälardalens Högskola.ORCID iD: 0000-0002-0407-9831
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2021 (English)In: Family Caregiving and Persons with Dementia, 2021, Vol. 5, p. 154-Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

As welfare providers struggle to meet the care needs of persons with dementia (PwDs), most of their needs are being met by a family carers, most often a spouse. The situation for spouse carers is unique, e.g., with grief, loneliness and loss of intimacy combining with stress and poor health. Research is needed to develop adequate support for spouse carers based on evidence of what influences negative and positive outcomes of care. The present study investigated psychosocial correlates of spouse carers’ (i) negative impact and (ii) positive value of caring. Data from a cross-sectional survey of 165 spouse carers community-resident in Sweden was analysed in two hierarchical regression models to predict negative impact and positive value of caring. Results found that negative impact and positive value were explained by different variables, significant predictors for negative impact included carer stress, health, and emotional loneliness, and change in intimacy with the care-recipient, while positive value was predicted by mutuality, change in closeness to the care-recipient and quality of support. Negative impact and positive value shared variance of only 17.2%. Thus, negative impact and positive value represent different aspects of the carer situation. Consequently, support needs to target several aspects in carers’ life, aiming to; facilitate for spouses to manage PwD’s impairment, increase emotional support while also strengthening the relationship between carer and PwD to reduce negative impact while increasing positive value.

Place, publisher, year, edition, pages
2021. Vol. 5, p. 154-
Series
Innovation in Ageing
National Category
Gerontology, specialising in Medical and Health Sciences
Research subject
Health and Welfare, Identifiering och utveckling av stöd för att möta behov hos personer som vårdar en sammanboende partner med demens
Identifiers
URN: urn:nbn:se:du-39140DOI: 10.1093/geroni/igab046.586OAI: oai:DiVA.org:du-39140DiVA, id: diva2:1621532
Conference
GSA 2021 Annual Scientific Meeting
Funder
The Kamprad Family FoundationAvailable from: 2021-12-20 Created: 2021-12-20 Last updated: 2023-04-14Bibliographically approved

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Falk Johansson, MarcusMcKee, KevinDahlberg, LenaMarmstål Hammar, Lena

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Falk Johansson, MarcusMcKee, KevinDahlberg, LenaSummer Meranius, MartinaWilliams, Christine L.Marmstål Hammar, Lena
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Gerontology, specialising in Medical and Health Sciences

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CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • chicago-author-date
  • chicago-note-bibliography
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
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  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf