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Exhausted and trapped in isolation. Caring for a spouse with dementia during the Covid-19 pandemic
Dalarna University, School of Health and Welfare, Caring Science/Nursing. Mälardalens Högskola.ORCID iD: 0000-0003-2511-9502
Dalarna University, School of Health and Welfare, Care Sciences.ORCID iD: 0000-0002-8480-190x
Dalarna University, School of Health and Welfare, Social Work.ORCID iD: 0000-0002-7685-3216
Dalarna University, School of Health and Welfare, Social Work.ORCID iD: 0000-0002-8795-7555
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2021 (Swedish)In: Family Caregiving (HS Poster), 2021, p. 800-801Conference paper, Poster (with or without abstract) (Refereed)
Abstract [en]

Even before the Covid-19 pandemic, spouse carers of persons with dementia (PwDs) found their care responsibilities overwhelming and had little time to focus on their own lives. To minimize the risk of being infected with Covid-19, older persons are recommended to self-isolate in their homes, while formal support such as respite care and day care centers are withdrawn. This study involved semi-structured interviews with 24 spouse carers of community-living PwDs, with the aim of describing their situation during the pandemic. The interviews were analyzed with qualitative content analysis. Results revealed that they commonly declined help because of the perceived risk of their spouse being infected with Covid-19 and thus also possibly causing their death. They described feelings of being trapped in their situation, as they experienced having no choice than take all responsibility for the care of their partner themselves, with cost of being unable to take necessary breaks. This was described as making an already strained situation almost unbearable, which led to conflicts with their partner. However, the spouses also described positive aspects due to strategic changes in health and social care provision to prevent the spread of the virus, such as greater staff continuity in home care services, and patient transportation service. These made the PwD less stressed and influenced their everyday life positively. It could be concluded that the extent burden during the Covid-19 pandemic calls for extensive development of tailored support to better tackle the rapid changes that can occur in a society.

Place, publisher, year, edition, pages
2021. p. 800-801
Series
Innovations in Ageing
National Category
Gerontology, specialising in Medical and Health Sciences
Research subject
Health and Welfare, Identifiering och utveckling av stöd för att möta behov hos personer som vårdar en sammanboende partner med demens
Identifiers
URN: urn:nbn:se:du-39192DOI: 10.1093/geroni/igab046.2927OAI: oai:DiVA.org:du-39192DiVA, id: diva2:1622219
Conference
GSA 2021 Annual Scientific Meeting
Available from: 2021-12-21 Created: 2021-12-21 Last updated: 2023-04-14Bibliographically approved

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fulltext(151 kB)129 downloads
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Marmstål Hammar, LenaFalk Johansson, MarcusDahlberg, LenaMcKee, Kevin

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Marmstål Hammar, LenaFalk Johansson, MarcusDahlberg, LenaMcKee, KevinSummer Meranius, Martina
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CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • chicago-author-date
  • chicago-note-bibliography
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf