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Experiences, Challenges and Adaptations Among Stroke Rehabilitation Staff During the First and Second COVID ‐19 Waves in Sweden—A National Survey
Dalarna University, School of Health and Welfare, Caring Science/Nursing. Faculty of Health Science Kristianstad University Kristianstad.ORCID iD: 0000-0003-2887-3674
Department of Neurobiology, Care Sciences and Society Karolinska Institutet Huddinge;Theme Heart & Vascular and Neuro Karolinska University Hospital Stockholm.
Department of Community Medicine and Rehabilitation Umeå University Umeå.
Dalarna University, School of Health and Welfare, Care Sciences.
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2026 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 40, no 2, article id e70272Article in journal (Refereed) Published
Abstract [en]

Aims and objectives: This study aimed to explore stroke rehabilitation staff's experiences, challenges and adaptations in their work during the first two waves of the COVID-19 pandemic in Sweden.

Methods: A web survey was conducted from September to December 2020 with staff involved in stroke rehabilitation. It covered participant characteristics, experiences, COVID-19 management, patient safety, organisation, information allocation and information and communication technologies (ICT). Quantitative data was presented with descriptive statistics. Free-text responses were used to illuminate the findings.

Results: Three hundred and forty stroke rehabilitation staff answered the survey. No stroke rehabilitation organisation was closed entirely, but services had been paused or altered in several regions. Adaptations included prioritising patients with COVID-19 and thereby reducing the capacity to supply rehabilitation for stroke survivors. The participants experienced a shortage of personal protective equipment (PPE) and patient safety had been compromised. The pandemic restricted opportunities to provide ordinary rehabilitation, often resulting in ethical dilemmas and stress. The rapid transition to using ICT was primarily experienced positively.

Conclusions: Staff reported working under complex, constantly changing and stressful conditions during the first two waves of the COVID-19 pandemic. Disruptions in ordinary practice led to compromised patient safety and increased stress among staff, intensified by limited access to PPE. Ethical guidelines, as well as regular debriefing protocols, should be put in place to prevent adverse health outcomes among staff and to prepare healthcare systems for future crises and disruptions. ICT offers a potential pathway for more flexible and accessible care in the future.

Place, publisher, year, edition, pages
2026. Vol. 40, no 2, article id e70272
Keywords [en]
COVID‐19; rehabilitation; staff; stroke; survey
National Category
Health Care Service and Management, Health Policy and Services and Health Economy Neurology
Identifiers
URN: urn:nbn:se:du-53780DOI: 10.1111/scs.70272PubMedID: 42210555OAI: oai:DiVA.org:du-53780DiVA, id: diva2:2064603
Funder
Swedish Research Council Formas, 2020–02386Available from: 2026-06-02 Created: 2026-06-02 Last updated: 2026-06-02Bibliographically approved

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Kylén, MayaMcCarthy, LinneaElf, Marie

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