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Perspectives on clinical ethics support and ethically difficult situations: reflections and experiences
Örebro universitet, Institutionen för hälsovetenskaper.ORCID iD: 0000-0002-0068-943x
2017 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Healthcare personnel encounter ethically difficult situations in their everyday work and clinical ethics support might be important to support healthcare personnel to deal with these situations. The overall aim of this thesis was to describe perspectives on clinical ethics support, experiences of being in ethically difficult situations and experiences of facilitating ethics reflection. Methods. Study I had a descriptive design in which research articles were reviewed (n=54). In study II audio-recorded moral case deliberation (n=70) in 10 Swedish workplaces in hospitals and community care were analysed. In study III interviews were conducted with facilitators (n=11) of moral case deliberation. Study IV used non-participant observation during three weeks as well as informal conversations with healthcare personnel (n=12) in community home healthcare. Results and conclusion. In study I, two perspectives emerged on clinical ethics support, a “Top-down” perspective, where an individual or a group of “experts” in ethics could recommend the best course of action and a “Bottom-up” perspective that allows healthcare personnel to manage ethically difficult situations through ethical reflections led by a facilitator. Studies II and IV showed how ethically difficult situations on different levels are often connected with emotions and uncertainties. Study III showed the role of the facilitator to be fundamental in creating a space for self-reflection among healthcare personnel. Study IV showed that healthcare personnel face complex demands and expectations from the healthcare organization regarding the provision of care as well as having to meet the needs of patients and their next-of-kin. To conclude, healthcare personnel needed to find a balance among demands and expectations in order to satisfy those stakeholders involved and they had to seek compromise. There is a need for clinical ethics support that helps healthcare personnel reflect individually and collectively on ethically difficult situations they encounter in their everyday clinical practice. From this standpoint, a “Bottom-up” perspective may reduce the risk of moral distress among healthcare personnel and promote care based on person-centred values.

Place, publisher, year, edition, pages
Örebro: Örebro University , 2017. , p. 94
National Category
Other Health Sciences
Identifiers
URN: urn:nbn:se:du-32567ISBN: 978-91-7529-198-7 (print)OAI: oai:DiVA.org:du-32567DiVA, id: diva2:1426923
Public defence
2017-06-01, Örebro universitet, Gymnastikhuset, Hörsalen, 09:00 (Swedish)
Opponent
Supervisors
Available from: 2020-04-28 Created: 2020-04-28 Last updated: 2025-10-09Bibliographically approved
List of papers
1. Clinical Ethics Support for Healthcare Personnel: An Integrative Literature Review
Open this publication in new window or tab >>Clinical Ethics Support for Healthcare Personnel: An Integrative Literature Review
2017 (English)In: HEC Forum, ISSN 0956-2737, E-ISSN 1572-8498, Vol. 29, no 4, p. 313-346Article in journal (Refereed) Published
Abstract [en]

This study describes which clinical ethics approaches are available to support healthcare personnel in clinical practice in terms of their construction, functions and goals. Healthcare personnel frequently face ethically difficult situations in the course of their work and these issues cover a wide range of areas from prenatal care to end-of-life care. Although various forms of clinical ethics support have been developed, to our knowledge there is a lack of review studies describing which ethics support approaches are available, how they are constructed and their goals in supporting healthcare personnel in clinical practice. This study engages in an integrative literature review. We searched for peer-reviewed academic articles written in English between 2000 and 2016 using specific Mesh terms and manual keywords in CINAHL, MEDLINE and Psych INFO databases. In total, 54 articles worldwide described clinical ethics support approaches that include clinical ethics consultation, clinical ethics committees, moral case deliberation, ethics rounds, ethics discussion groups, and ethics reflection groups. Clinical ethics consultation and clinical ethics committees have various roles and functions in different countries. They can provide healthcare personnel with advice and recommendations regarding the best course of action. Moral case deliberation, ethics rounds, ethics discussion groups and ethics reflection groups support the idea that group reflection increases insight into ethical issues. Clinical ethics support in the form of a ‘‘bottom-up’’ perspective might give healthcare personnel opportunities to think and reflect more than a ‘‘top-down’’ perspective. A ‘‘bottom-up’’ approach leaves the healthcare personnel with the moral responsibility for their choice of action in clinical practice, while a ‘‘top-down’’ approach risks removing such moral responsibility.

Place, publisher, year, edition, pages
HEC Forum: Springer London, 2017
National Category
Health Sciences
Identifiers
urn:nbn:se:du-32540 (URN)10.1007/s10730-017-9325-4 (DOI)
Available from: 2020-04-23 Created: 2020-04-23 Last updated: 2025-10-09Bibliographically approved
2. What healthcare teams find ethically difficult: Captured in 70 moral case deliberations
Open this publication in new window or tab >>What healthcare teams find ethically difficult: Captured in 70 moral case deliberations
2016 (English)In: Nursing Ethics, ISSN 0969-7330, E-ISSN 1477-0989, Vol. 23, no 8, p. 825-837Article in journal (Refereed) Published
Abstract [en]

Background: Ethically difficult situations are frequently encountered by healthcare professionals. Moral case deliberation is one form of clinical ethics support, which has the goal to support staff to manage ethical difficulties. However, little is known which difficult situations healthcare teams need to discuss.

Aim: To explore which kinds of ethically difficult situations interprofessional healthcare teams raise during moral case deliberation.

Research design: A series of 70 moral case deliberation sessions were audio-recorded in 10 Swedish workplaces. A descriptive, qualitative approach was applied, using thematic content analysis.

Ethical considerations: An advisory statement specifying no objections to the study was provided from an Ethical Review Board, and consent to be recorded was assumed by virtue of participation in the moral case deliberation.

Findings: Three themes emerged: powerlessness over managing difficult interactions with patients and next-of-kin, unease over unsafe and unequal care, and uncertainty over who should have power over care decisions. The powerlessness comprised feelings of insufficiency, difficulties to respond or manage patient's/next-of-kin's emotional needs or emotional outbursts and discouragement over motivating patients not taking responsibility for themselves. They could be uncertain over the patient's autonomy, who should have power over life and death, disclosing the truth or how much power next-of-kin should have.

Discussion: The findings suggest that the nature of the ethically difficult situations brought to moral case deliberations contained more relational-oriented ethics than principle-based ethics, were permeated by emotions and the uncertainties were pervaded by power aspects between stakeholders.

Conclusion: MCD can be useful in understanding the connection between ethical issues and emotions from a team perspective.

Place, publisher, year, edition, pages
London, United Kingdom: Sage Publications, 2016
Keywords
Clinical ethics, ethically difficult situations, ethics consultation, healthcare professionals, moral case deliberation
National Category
Nursing
Identifiers
urn:nbn:se:du-32569 (URN)10.1177/0969733015583928 (DOI)000391461900002 ()25991657 (PubMedID)2-s2.0-85007109749 (Scopus ID)
Note

Funding Agency:

Stiftelsen Olle Engqvist Byggmästare 

Available from: 2015-06-05 Created: 2020-04-28 Last updated: 2025-10-09Bibliographically approved
3. ‘It’s like sailing’: experiences of the role as facilitator during moral case deliberation
Open this publication in new window or tab >>‘It’s like sailing’: experiences of the role as facilitator during moral case deliberation
2017 (English)In: Clinical Ethics, ISSN 1477-7509, E-ISSN 1758-101X, Vol. 12, no 3, p. 1-8Article in journal (Refereed) Published
Abstract [en]

Moral case deliberation is one form of clinical ethics support, and there seems to be different ways of facilitating thedialogue. This paper aimed to explore the personal experiences of Swedish facilitators of their role in moral casedeliberations. Being a facilitator was understood through the metaphor of sailing: against the wind or with it. Therole was likened to a sailor’s set of skills: to promote security and well-being of the crew, to help crew navigate theirmoral reflections, to sail a course into the wind against homogeneity, to accommodate the crew’s needs and just sail withthe wind, and to steer towards a harbour with authority and expertise. Balancing the disparate roles of being accom-modative and challenging may create a free space for emotions and ideas, including self-reflection and consideration ofmoral demands. This research opens the question of whether all these skills can be taught through systematic training orwhether facilitators need to possess the characteristics of being therapeutic, pedagogical, provocative, sensitive andauthoritarian.

Place, publisher, year, edition, pages
United Kingdom: Royal Society of Medicine Press, 2017
Keywords
Ethics, clinical ethics, ethics consultation, moral case deliberation, healthcare professionals
National Category
Medical and Health Sciences Medical Ethics
Identifiers
urn:nbn:se:du-32564 (URN)DOI: 10.1177/1477750917710882 (DOI)2-s2.0-85029502486 (Scopus ID)
Projects
NUPARC
Available from: 2020-04-28 Created: 2020-04-28 Last updated: 2025-10-09
4. Balancing different expectations in ethically difficult situations while providing community home health care services: A focused ethnographic approach
Open this publication in new window or tab >>Balancing different expectations in ethically difficult situations while providing community home health care services: A focused ethnographic approach
2018 (English)In: BMC Geriatrics, E-ISSN 1471-2318, Vol. 18, no 1, article id 312Article in journal (Refereed) Published
Abstract [en]

Background: The general opinion in society is that everyone has the right to live in their own home as long as possible. Provision of community home health care services is therefore increasingly common. Healthcare personnel encounter ethically difficult situations when providing care, but few studies describe such situations in the context of community home health care services. Method: This study has a qualitative descriptive design, using focused ethnography. Data from 21 days of fieldwork (in total 123 h) consisting of non-participant observations (n = 122), memos and informal interviews with registered nurses (n = 8), and nurse assistants (n = 4). The transcribed texts were analyzed with interpretive content analysis. Results: The inductive analyses revealed two categories: 1) difficulties in balancing different requirements, expectations and needs, and 2) use of coping strategies. The results demonstrate that there are different values and expectations that influence each other in a complex manner. The personnel dealt with these situations by generating strategies of coaxing the patients and finding a space to deliberate and share difficult emotions with their colleagues. Conclusions: This study reveals that complex ethically difficult situations emerged in the context of community home health care services, and healthcare personnel were forced to find a balance regarding the different demands, expectations, values and needs that influence the care provided.

Place, publisher, year, edition, pages
BioMed Central Ltd., 2018
Keywords
Community home health care services, Ethically difficult situations, Ethnography, Healthcare professional, adult, article, content analysis, controlled study, coping behavior, expectation, female, field work, genetic transcription, home care, human, interview, major clinical study, male, registered nurse
National Category
Health Sciences
Identifiers
urn:nbn:se:du-32556 (URN)10.1186/s12877-018-0996-8 (DOI)000453237500001 ()30547755 (PubMedID)2-s2.0-85058603986 (Scopus ID)
Available from: 2018-12-27 Created: 2020-04-28 Last updated: 2025-10-09Bibliographically approved

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