Dalarna University's logo and link to the university's website

du.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • chicago-author-date
  • chicago-note-bibliography
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Person-centred care transitions for people with stroke: study protocol for a feasibility evaluation of codesigned care transition support.
Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm; Theme of Women's Health and Allied Health Professionals, Karolinska University Hospital, Stockholm, Sweden.
Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden; Theme of Women's Health and Allied Health Professionals, Karolinska University Hospital, Stockholm, Sweden.
Dalarna University, School of Health and Welfare, Medical Science.ORCID iD: 0000-0003-0581-2895
Department of Clinical Sciences Danderyd Hospital, Karolinska Institutet, Stockholm, Sweden.
Show others and affiliations
2021 (English)In: BMJ Open, E-ISSN 2044-6055, Vol. 11, no 12, article id e047329Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Care transitions following stroke should be bridged with collaboration between hospital staff and home rehabilitation teams since well-coordinated transitions can reduce death and disability following a stroke. However, health services are delivered within organisational structures, rather than being based on patients' needs. The aim of this study protocol is to assess the feasibility, operationalised here as fidelity and acceptability, of a codesigned care transition support for people with stroke.

METHODS: This study protocol describes the evaluation of a feasibility study using a non-randomised controlled design. The codesigned care transition support includes patient information using videos, leaflets and teach back; what-matters-to me dialogue; a coordinated rehabilitation plan; bridged e-meeting; and a message system for cross-organisational collaboration. Patients with stroke, first time or recurrent, who are to be discharged home from hospital and referred to a rehabilitation team in primary healthcare for continued rehabilitation in the home will be included. One week after stroke, data will be collected on the primary outcome, namely satisfaction with the care transition support, and on the secondary outcome, namely health literacy and medication adherence. Data on use of healthcare will be obtained from a register of healthcare contacts. The outcomes of patients and significant others will be compared with matched controls from other geriatric stroke and acute stroke units, and with matched historic controls from a previous dataset at the intervention and control units. Data on acceptability and fidelity will be assessed through interviews and observations at the intervention units.

ETHICS AND DISSEMINATION: Ethical approvals have been obtained from the Swedish Ethical Review Authority. The results will be published open-access in peer-reviewed journals. Dissemination also includes presentation at national and international conferences.

DISCUSSION: The care transition support addresses a poorly functioning part of care trajectories in current healthcare. The development of this codesigned care transition support has involved people with stroke, significant other, and healthcare professionals. Such involvement has the potential to better identify and reconceptualise problems, and incorporate user experiences.

TRIAL REGISTRATION NUMBER: http://www.clinicaltrials.gov id: NCT02925871. Date of registration 6 October 2016.

PROTOCOL VERSION: 1.

Place, publisher, year, edition, pages
2021. Vol. 11, no 12, article id e047329
Keywords [en]
organisation of health services, rehabilitation medicine, stroke
National Category
Nursing Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
URN: urn:nbn:se:du-39251DOI: 10.1136/bmjopen-2020-047329ISI: 000736039200031PubMedID: 34949604Scopus ID: 2-s2.0-85122327520OAI: oai:DiVA.org:du-39251DiVA, id: diva2:1624971
Available from: 2022-01-05 Created: 2022-01-05 Last updated: 2025-10-09Bibliographically approved

Open Access in DiVA

fulltext(411 kB)267 downloads
File information
File name FULLTEXT01.pdfFile size 411 kBChecksum SHA-512
63aec6ee089e1f5129ce0039fcccf1cc683eacaea8456f892ee5e81b7096c8a1df85c80ab4fed6d622dc1c327ffc514582a51b7bce6886f5ea87d72845735909
Type fulltextMimetype application/pdf

Other links

Publisher's full textPubMedScopus

Authority records

Tistad, MalinElf, Marie

Search in DiVA

By author/editor
Tistad, MalinElf, Marie
By organisation
Medical ScienceCaring Science/Nursing
In the same journal
BMJ Open
NursingHealth Care Service and Management, Health Policy and Services and Health Economy

Search outside of DiVA

GoogleGoogle Scholar
Total: 267 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 325 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • chicago-author-date
  • chicago-note-bibliography
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf