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Self-management from the perspective of people with stroke – An interview study
Dalarna University, School of Health and Welfare, Care Sciences. Dalarna University, School of Health and Welfare, Medical Science.ORCID iD: 0000-0002-5806-8812
Dalarna University, School of Health and Welfare, Caring Science/Nursing. Lund University.ORCID iD: 0000-0003-2887-3674
Dalarna University, School of Health and Welfare, Medical Science. Center for Clinical Research Dalarna - Uppsala University, Falun; Uppsala University.ORCID iD: 0000-0002-8709-4446
Northumbria University, Newcastle upon Tyne, UK..
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2023 (English)In: Patient Education and Counseling, ISSN 0738-3991, E-ISSN 1873-5134, Vol. 112, article id 107740Article in journal (Refereed) Published
Abstract [en]

Objective: Self-management support can improve quality of life, mood, self-efficacy, and physical function following a stroke. Knowledge of how people with stroke understand and experience self-management in different contexts is crucial to developing effective self-management support. This study explored how people with stroke understand and practice self-management during the post-acute phase. Method: A descriptive study using qualitative content analysis to explore data from semistructured interviews Results: Eighteen participants were interviewed. Most participants interpreted self-management as ‘taking care of their business’ and ‘being independent”. However, they encountered difficulties performing daily activities, for which they felt unprepared. Although interest in implementing self-management support increases, participants did not report receiving specific advice from healthcare professionals. Conclusion: People continue to feel unprepared to manage everyday activities after hospital discharge and must largely work things out for themselves. There is an overlooked opportunity to start the process of self-management support earlier in the stroke pathway, with healthcare professionals and people with stroke combining their skills, ideas and expertise. This would enable confidence to self-management to flourish rather than decrease during the transition from hospital to home. Practical implications: Individual tailored self-management support could help people with stroke more successfully manage their daily lives post-stroke. © 2023 The Authors

Place, publisher, year, edition, pages
Elsevier Ireland Ltd , 2023. Vol. 112, article id 107740
Keywords [en]
Content analysis, Qualitative, Self-management, Self-management support, Stroke, Stroke rehabilitation
National Category
Nursing
Identifiers
URN: urn:nbn:se:du-45873DOI: 10.1016/j.pec.2023.107740ISI: 000983762000001PubMedID: 37059027Scopus ID: 2-s2.0-85152146746OAI: oai:DiVA.org:du-45873DiVA, id: diva2:1752103
Available from: 2023-04-20 Created: 2023-04-20 Last updated: 2026-04-21Bibliographically approved
In thesis
1. From concept to practice: Advancing self-management support in stroke rehabilitation
Open this publication in new window or tab >>From concept to practice: Advancing self-management support in stroke rehabilitation
2026 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Background: Stroke rehabilitation increasingly takes place at home, where individuals are expected to take a more active role in managing life after stroke. Internationally, self-management support has gained attention as an approach to strengthening confidence, autonomy and participation. However, in Sweden, this is not yet an established part of stroke rehabilitation and knowledge remains limited regarding how it is understood, experienced, implemented and evaluated in this context.

Aim: The overall aim of this thesis was to expand knowledge of self-management after stroke and to explore how self-management support can be understood, implemented and measured in Swedish stroke rehabilitation.

Methods: This thesis comprise four studies using multiple methods. Study I explored how people with stroke experienced and practised self-management in everyday life after discharge. Study II reviewed barriers and enablers related to implementing self-management support in stroke rehabilitation. Study III described the translation and cross-cultural adaptation of the Stroke Self-Efficacy Questionnaire into Swedish, including preliminary assessments of content and face validity. Study IV evaluated the implementation of the Bridges self-management programme in two Swedish stroke sites, using qualitative and quantitative data to examine the implementation process.

Results: Self-management after stroke was shaped by confidence, readiness, relationships, and context. Across the studies, self-management support emerged as relational and context-dependent rather than as an isolated individual activity. In Swedish stroke rehabilitation, introducing self-management support required not only changes in practice, but also conceptual clarification, since healthcare practitioners and people with stroke expressed varied understandings of self-management. The implementation of Bridges increased awareness among healthcare practitioners and contributed to small shifts in communication with patients, but patient-level impact remained limited. Implementation was influenced by leadership support, team engagement, organisational stability, and available time and resources. The Swedish version of the Stroke Self-Efficacy Questionnaire provided a culturally adapted instrument for future research and clinical evaluation.

Conclusions: The findings suggest that developing self-management support in Swedish stroke rehabilitation requires not only changes in practice, but also conceptual clarity, recognition of the relational and contextual nature of self-management, appropriate ways of evaluation and organisational support over time.

Place, publisher, year, edition, pages
Falun: Dalarna University, 2026
Series
Dalarna Doctoral Dissertations ; 52
Keywords
Life after stroke, Stroke rehabilitation, Self-management support, Implementation science, Self-efficacy, Person-centred care
National Category
Nursing
Identifiers
urn:nbn:se:du-53238 (URN)978-91-990244-3-1 (ISBN)
Public defence
2026-05-29, lecture hall F135, Campus Falun, 09:00 (Swedish)
Opponent
Supervisors
Available from: 2026-04-21 Created: 2026-03-26 Last updated: 2026-04-21Bibliographically approved

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Klockar, ErikaKylén, MayaGustavsson, CatharinaElf, Marie

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