Supporting someone after their stroke: family members' views and experiences of self-managementShow others and affiliations
2026 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 48, no 1, p. 128-135Article in journal (Refereed) Published
Sustainable development
SDG 3: Good health and well-being
Abstract [en]
PURPOSE: Self-management has increased in recognition in stroke research and rehabilitation along with growing trends of shorter hospital stays and more patient-centred care. Family members are key persons in the self-management process, but their views and experiences of self-management have not been studied in detail. This study aimed to explore family members' understanding of self-management, the strategies they use and the challenges they face when providing support.
METHODS: For this descriptive study, semi-structured interviews with family members (n = 27) were conducted. Data were analysed using inductive content analysis.
RESULTS: The analysis resulted in three main categories and eight subcategories. Most family members saw self-management as performing practical tasks, such as daily living activities and rehabilitation training. However, family members described a broad range of actions to support self-management, including emotional and motivational support. They found it challenging to give the right amount of support and expressed a need of more information after discharge.
CONCLUSIONS: Family members' conceptualisations of self-management differ from the strategies they use to provide support. A clearer understanding of self-management as a collective process can benefit the development and delivery of efficient self-management support.
Place, publisher, year, edition, pages
2026. Vol. 48, no 1, p. 128-135
Keywords [en]
Stroke, family, qualitative, self-management, social support
National Category
Nursing
Identifiers
URN: urn:nbn:se:du-50597DOI: 10.1080/09638288.2025.2500067PubMedID: 40340606Scopus ID: 2-s2.0-105004722188OAI: oai:DiVA.org:du-50597DiVA, id: diva2:1958101
2025-05-132025-05-132026-01-13Bibliographically approved