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Supporting someone after their stroke: family members' views and experiences of self-management
Dalarna University, School of Health and Welfare, Care Sciences.
Dalarna University, School of Health and Welfare, Caring Science/Nursing. Department of Health Sciences, Lund University, Lund.ORCID iD: 0000-0003-2887-3674
Dalarna University, School of Health and Welfare, Medical Science. Center for Clinical Research Dalarna, Uppsala University, Falun; ; Department of Public Health and Caring Sciences, Uppsala University, Uppsala.ORCID iD: 0000-0002-8709-4446
Department of Nursing, Midwifery & Health, Northumbria University, Newcastle upon Tyne, UK., GB.
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2026 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 48, no 1, p. 128-135Article in journal (Refereed) Published
Sustainable development
SDG 3: Good health and well-being
Abstract [en]

PURPOSE: Self-management has increased in recognition in stroke research and rehabilitation along with growing trends of shorter hospital stays and more patient-centred care. Family members are key persons in the self-management process, but their views and experiences of self-management have not been studied in detail. This study aimed to explore family members' understanding of self-management, the strategies they use and the challenges they face when providing support.

METHODS: For this descriptive study, semi-structured interviews with family members (n = 27) were conducted. Data were analysed using inductive content analysis.

RESULTS: The analysis resulted in three main categories and eight subcategories. Most family members saw self-management as performing practical tasks, such as daily living activities and rehabilitation training. However, family members described a broad range of actions to support self-management, including emotional and motivational support. They found it challenging to give the right amount of support and expressed a need of more information after discharge.

CONCLUSIONS: Family members' conceptualisations of self-management differ from the strategies they use to provide support. A clearer understanding of self-management as a collective process can benefit the development and delivery of efficient self-management support.

Place, publisher, year, edition, pages
2026. Vol. 48, no 1, p. 128-135
Keywords [en]
Stroke, family, qualitative, self-management, social support
National Category
Nursing
Identifiers
URN: urn:nbn:se:du-50597DOI: 10.1080/09638288.2025.2500067PubMedID: 40340606Scopus ID: 2-s2.0-105004722188OAI: oai:DiVA.org:du-50597DiVA, id: diva2:1958101
Available from: 2025-05-13 Created: 2025-05-13 Last updated: 2026-01-13Bibliographically approved

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McCarthy, LinneaKylén, MayaGustavsson, CatharinaElf, Marie

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CiteExportLink to record
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Citation style
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