Facebook as an arena for peer support?-Knowledge exchange and normative illness narratives about stroke Show others and affiliations
2025 (English) In: Digital Health, E-ISSN 2055-2076, Vol. 11, article id 20552076251376274Article in journal (Refereed) Published
Abstract [en]
BACKGROUND: Experiencing a stroke disrupts the expected life course and can negatively impact cognitive, emotional, and physical functioning, making it a major source of disability globally. To support recovery, individuals can seek help by sharing their experiences in peer-to-peer support communities.
OBJECTIVE: The objective of this study was to use discourse analysis to examine how members of a peer-to-peer online support community for stroke survivors construct their understanding of the condition and use narratives to reconstruct their identity into different subject positions.
METHODS: The study context was a private Swedish peer-to-peer online support community created and administered by middle-aged people with lived experience of stroke. Data was collected through structured protocols that captured the content of posts and comments (n = 397). The analysis has followed the principles of Laclau and Mouffes discursive framework.
RESULTS: Our findings suggest that identity struggles revolve around looking ahead and negotiating normative expectations with oneself and others. We identified five subject positions: survivor, pathfinder, mentor, struggler, and outsider. These positions highlight the plurality and fluidity of post-stroke identity processes. Members often shifted between these roles based on changes in health, emotional state, or community interactions.
CONCLUSIONS: The diversity of subject positions demonstrates that stroke recovery is not a uniform process, emphasizing the importance of recognizing identity work as a core aspect of post-stroke adaptation. The findings highlight the need for more flexible, patient-centered services that accommodate diverse narratives, including those shaped by long-term disability, emotional trauma, and shifting life priorities.
Place, publisher, year, edition, pages 2025. Vol. 11, article id 20552076251376274
Keywords [en]
Peer-to-peer online support, normative discourses, recovery process, stroke
National Category
Health Sciences
Identifiers URN: urn:nbn:se:du-51359 DOI: 10.1177/20552076251376274 ISI: 001566926300001 PubMedID: 40937068 OAI: oai:DiVA.org:du-51359 DiVA, id: diva2:2001909
2025-09-292025-09-292025-10-31 Bibliographically approved