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  • 51.
    Jess, Kari
    et al.
    Dalarna University, School of Health and Welfare, Social Work.
    Lyrberg, Ann
    Nehlin Gordh, Christina
    Interventionen Jag & min familj: Ett familjeorienterat öppenvårdsprogram2023Report (Other academic)
    Abstract [sv]

    Jag och min familj är ett kunskaps- och motivationsbaserat program som omfattar åtta träffar och som ges inom socialtjänstens öppenvård för familjer där någon vuxen har problem med missbruk av alkohol eller droger. Syftet med studien var dels att utvärdera programmets resultat i termer av barns och föräldrars välbefinnande, familjeklimat och föräldrarnas alkohol- och droganvändning, men också att fånga deltagarnas, barn och föräldrars, upplevelser av att delta i programmet.

    Utfallsstudien omfattade 59 barn i åldrarna 5–20 år och 67 föräldrar, av vilka cirka två tredjedelar fullföljde programmet. Utfallet redovisar självrapporterade data före intervention, efter avslutad intervention och tre månader efteravslutad intervention. Utfallen för både barnen och de vuxna visade en signifikant ökning av närhet i familjen och en signifikant minskning av familjekaos från före intervention till efter interventionen, vilket kvarstod tre månader efter interventionen. Barnen rapporterade också en minskning av beteendeproblem, medan föräldrar rapporterade en liknande minskning av symtom på ångest och depression. Föräldrar rapporterade också mindre alkohol- och drogkonsumtion efter interventionen i förhållande till utgångsvärdena. Dessa resultat bekräftas av intervjuresultaten där både barn och vuxna berättar om hur kommunikationen ökat i familjen, att familjen lärt känna varandra bättre, och att tabut kring att prata om missbruket avlastat barnen från känslor av skuld och skam. Därmed har också föräldrarnas ångest och oro minskat. Resultaten tyder på att programmet Jag och min familj stöder barnen och familjernas välbefinnande och potentiellt skulle kunna skydda barn från senare skadliga effekter.

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  • 52.
    Jess, Kari
    et al.
    Dalarna University, School of Health and Welfare, Social Work.
    Lyrberg, Ann
    FoU Gävleborg.
    Nehlin Gordh, Christina
    Uppsala universitet.
    Jag & min familj: En studie av programmets effekter2021Report (Other academic)
    Abstract [en]

    The program Me & My Family, which is aimed at families where a parent has problems with alcohol or drug abuse, seems to have effects. The effects are mainly reflected in a better family climate and better mental health for children and adults. This is also confirmed by interview answers. However, more participating families and longer follow-up times are needed to be able to present robust results. One challenge has been to get an influx of families into the program, a result of increasingly specialized organizations working in "downpipes".

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  • 53.
    Jess, Kari
    et al.
    Dalarna University, School of Health and Welfare, Social Work.
    Petersén, A. C.
    From “What Works” to “Why it Works” – From a Humean to an Aristotelian Understanding of Causality2023In: Research on social work practice, ISSN 1049-7315, E-ISSN 1552-7581, Vol. 33, no 6, p. 686-694Article in journal (Refereed)
    Abstract [en]

    Purpose: Authors of this theoretical article are questioning Hume's view on causality by arguing for Aristotle’s pluralistic view as an alternative strategy for social work research and practice. Methods: Aristotle's notion of causality is applied to discuss its relevance, and then tested on a real case, thereby illustrating how it can contribute to explain why something works. Results: Different types of causes can reveal characteristics that are preconditional for professional's and service user's mutual roles in enhancing outcomes. They can further reveal the architecture of the intervention; the underlying processes for actions to reach a desired goal. Discussion: To deliver knowledge of relevance in social work, one needs to explain the results of an intervention through causal analysis as well as understanding the content and processes of it. Aristotle's forms of causality make it possible to take the contextual historicism of social phenomenon into consideration and give knowledge beyond effects. © The Author(s) 2023.

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  • 54.
    Jess, Kari
    et al.
    Dalarna University, School of Health and Welfare, Social Work.
    von Ahlefeld Nisser, Désirée
    Dalarna University, School of Teacher Education, Education.
    Ericson, Jenny
    Dalarna University, School of Health and Welfare, Caring Science/Nursing.
    Olsson, Maria
    Dalarna University, School of Teacher Education, Education.
    Randell, Eva
    Dalarna University, School of Health and Welfare, Social Work.
    Tillsammans för varje barn i Falu kommun: Ett pilotprojekt 2018-20212022Report (Other academic)
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  • 55.
    Jing, Jing
    et al.
    KTH Royal Inst Technol, Sweden.
    Dahlberg, Lena
    Dalarna University, School of Health and Welfare, Social Work. Stockholm Univ, Karolinska Inst, Aging Res Ctr, Stockholm, Sweden.
    Canter, David
    Liverpool Hope Univ, England.
    Plater-Zyberk, Elizabeth
    Univ Miami, USA.
    The Role of Third Place concerning Loneliness in the Context of Ageing in Place: Three Neighbourhoods in Stockholm2024In: Health & Social Care in the Community, ISSN 0966-0410, E-ISSN 1365-2524, Vol. 2024, article id 4172682Article in journal (Refereed)
    Abstract [en]

    There is an increasing recognition of the impact of built environment in the neighbourhood on healthy ageing, especially in the context of ageing in place. This study examines perceptions of third place and its potential value for mitigating loneliness in older adults. Thirty participants aged 65-89, living in ordinary housing across three neighbourhoods in the city of Stockholm, Sweden, conducted the interview-based sorting procedures, namely, Multiple Sorting Tasks (MST). In each individual MST procedure, the participant was asked to sort twenty pictures into groups using his or her own categories. The data were analysed using Multidimensional Scalogram Analysis, integrating qualitative data input and quantitative statistical analysis of the categorisations. Accessible local third places, which facilitate physical activities (especially walking) and community building (meaningful social connections) and provide options for food (a medium for social interactions), were seen as vital resources to combat loneliness. Thus, these places are supportive built environment elements of healthy ageing and ageing in place. The management aspect in third places operated by municipalities, including designing diverse public programs and services, and the service mentality of the staff members play an important role in making these places feel safe, at home, and potentially lessen the experience of loneliness to some extent. This study adds an urban design and planning perspective that can be integrated into environmental approaches to combat loneliness among older adults living in the community.

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  • 56.
    Jones, Amanda
    et al.
    Dalarna University, School of Health and Welfare, Social Work. Dalarna University, School of Health and Welfare, Care Sciences. Dalarna University, School of Health and Welfare, Social Work.
    Jess, Kari
    Dalarna University, School of Health and Welfare, Social Work.
    Schön, Ulla-Karin
    Dalarna University, School of Health and Welfare, Social Work. Stockholm University, Stockholm.
    How do users with comorbidity perceive participation in social services?: A qualitative interview study2021In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 16, no 1, article id 1901468Article in journal (Refereed)
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  • 57.
    Jones, Amanda
    et al.
    Dalarna University, School of Health and Welfare, Social Work. Dalarna University, School of Health and Welfare, Care Sciences. Dalarna University, School of Health and Welfare, Social Work.
    Knutsson, O.
    Schön, Ulla-Karin
    Dalarna University, School of Health and Welfare, Social Work. Stockholm University.
    Coordinated individual care planning and shared decision making: staff perspectives within the comorbidity field of practice: Personals perspektiv på samordnad individuell planering och delat beslutsfattande inom samsjuklighetsområdet2022In: European Journal of Social Work, ISSN 1369-1457, E-ISSN 1468-2664, Vol. 25, no 2, p. 355-367Article in journal (Refereed)
    Abstract [en]

    Integrated treatment is recommended for users with a comorbidity of mental illness and substance misuse. However, due to a divided support system, coordinated individual care planning (CIP) and user participation are emphasised to provide users with the necessary support. One way of increasing user participation is through shared decision making. However, the challenges are evident why coordination and user participation are not used in practice as intended. To contribute with knowledge to bridge the gap between the intended CIP process and practice, this study examined the problems and solutions perceived by staff. Future workshops were conducted with 17 staff members from social services and health care. Problems and solutions were identified within three main areas: organisation and staff knowledge, coordination among staff, and staff attitudes and user participation. The problems are in agreement with previous research, but this study contributes with knowledge regarding solutions. Overall, the solutions expressed relate to improving collaboration between providers and users and having more resources to conduct this work. However, the study also assents to the question if CIP is the best way to coordinate support or if integrated treatment should be the future. © 2021 Informa UK Limited, trading as Taylor & Francis Group.

  • 58.
    Kalliokoski, Julia
    et al.
    Dalarna University, School of Health and Welfare, Social Work.
    Hjelm, Tilda
    Dalarna University, School of Health and Welfare, Social Work.
    “Det finns ingen bättre girl-power”: En feministisk kritisk diskursanalys om YouTube videor och kommentarsfält om att sälja sexuellt material på OnlyFans2024Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    The purpose of this study is to critically examine discourses in YouTube videos and comments about sexual content on OnlyFans. It focuses on how these discourses reflect gender and power inequalities and potentially contribute to the normalization of selling sexual content. Using feminist critical discourse analysis, we identify three discourses concerning sexual content: the discourse of prostitution, the discourse of the anti-social female influencer and a dominant neoliberal discourse that runs throughout the material. Our findings highlight that women who sell sexual content are stigmatized and blamed, which can contribute to the normalization of gender inequality. The study indicates that commentators value traditional gender roles, thus perpetuating unequal relations of power. By separating sexual content on OnlyFans from prostitution, the discourses contribute to normalization of selling one's body on OnlyFans. Rather than acknowledging structural causes of the phenomenon, the blame and responsibility is placed upon the individual.

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  • 59. Kirvalidze, M.
    et al.
    Abbadi, A.
    Dahlberg, Lena
    Dalarna University, School of Health and Welfare, Social Work. Stockholm University.
    Sacco, L. B.
    Calderón-Larrañaga, A.
    Morin, L.
    Estimating pairwise overlap in umbrella reviews: Considerations for using the corrected covered area (CCA) index methodology2023In: Research Synthesis Methods, ISSN 1759-2879, E-ISSN 1759-2887, Vol. 14, no 5, p. 764-767Article, review/survey (Refereed)
    Abstract [en]

    Umbrella reviews (reviews of systematic reviews) are increasingly used to synthesize findings from systematic reviews. One important challenge when pooling data from several systematic reviews is publication overlap, that is, the same primary publications being included in multiple reviews. Pieper et al. have proposed using the corrected covered area (CCA) index to quantify the degree of overlap between systematic reviews to be pooled in an umbrella review. Recently, this methodology has been integrated in Excel- or R-based tools for easier use. In this short letter, we highlight an important consideration for using the CCA methodology for pairwise overlap assessment, especially when reviews include varying numbers of primary publications, and we urge researchers to fine-tune this method and exercise caution when review exclusion decisions are based on its output. © 2023 The Authors. Research Synthesis Methods published by John Wiley & Sons Ltd.

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  • 60.
    Kirvalidze, Mariam
    et al.
    Karolinska Institutet and Stockholm University, Solna.
    Abbadi, Ahmad
    Karolinska Institutet and Stockholm University, Solna.
    Dahlberg, Lena
    Dalarna University, School of Health and Welfare, Social Work. Karolinska Institutet and Stockholm University, Solna.
    Sacco, Lawrence B
    Stockholm University, Stockholm.
    Morin, Lucas
    Karolinska Institutet, Solna; University Hospital of Besançon, Besançon, France.
    Calderón-Larrañaga, Amaia
    Karolinska Institutet and Stockholm University, Solna; Stockholm Gerontology Research Center, Stockholm.
    Effectiveness of interventions designed to mitigate the negative health outcomes of informal caregiving to older adults: an umbrella review of systematic reviews and meta-analyses2023In: BMJ Open, E-ISSN 2044-6055, Vol. 13, no 4, article id e068646Article in journal (Refereed)
    Abstract [en]

    OBJECTIVES: This umbrella review aimed to evaluate whether certain interventions can mitigate the negative health consequences of caregiving, which interventions are more effective than others depending on the circumstances, and how these interventions are experienced by caregivers themselves.

    DESIGN: An umbrella review of systematic reviews was conducted.

    DATA SOURCES: Quantitative (with or without meta-analyses), qualitative and mixed-methods systematic reviews were included.

    ELIGIBILITY CRITERIA: Reviews were considered eligible if they met the following criteria: included primary studies targeting informal (ie, unpaid) caregivers of older people or persons presenting with ageing-related diseases; focused on support interventions and assessed their effectiveness (quantitative reviews) or their implementation and/or lived experience of the target population (qualitative reviews); included physical or mental health-related outcomes of informal caregivers.

    DATA EXTRACTION AND SYNTHESIS: A total of 47 reviews were included, covering 619 distinct primary studies. Each potentially eligible review underwent critical appraisal and citation overlap assessment. Data were extracted independently by two reviewers and cross-checked. Quantitative review results were synthesised narratively and presented in tabular format, while qualitative findings were compiled using the mega-aggregation framework synthesis method.

    RESULTS: The evidence regarding the effectiveness of interventions on physical and mental health outcomes was inconclusive. Quantitative reviews were highly discordant, whereas qualitative reviews only reported practical, emotional and relational benefits. Multicomponent and person-centred interventions seemed to yield highest effectiveness and acceptability. Heterogeneity among caregivers, care receivers and care contexts was often overlooked. Important issues related to the low quality of evidence and futile overproduction of similar reviews were identified.

    CONCLUSIONS: Lack of robust evidence calls for better intervention research and evaluation practices. It may be warranted to avoid one-size-fits-all approaches to intervention design. Primary care and other existing resources should be leveraged to support interventions, possibly with increasing contributions from the non-profit sector.

    PROSPERO REGISTRATION NUMBER: CRD42021252841; BMJ Open: doi:10.1136/bmjopen-2021-053117.

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  • 61.
    Knezevic, Zlatana
    Dalarna University, School of Health and Welfare, Social Work.
    Beyond ‘the war on vaccines’: An improvised approach to controversies and conflicts in the vaccination debate2024Conference paper (Refereed)
    Abstract [en]

    The essay draws on the shifting methodology in an ongoing multi-sited digital ethnography research project about vaccination-related social media forums. The research, which focuses on vaccine caution and vaccine confidence, was initially directed by ‘following the conflict,’ one of the strategies of following thatGeorge Marcus discusses in his methodology for multi-sited ethnography. However, over the course of time, and after improvisations related to access, positionality, the changing nature of digital content and context of interactions, the initial focus on ‘the war on vaccines’ shifted into a challenging ofoversimplified ideas of oppositional stances, division, and ‘conflict’. What I refer to as ‘following agreements within the conflict’ helps to highlight how the forum members, regardless of their stance, can challenge debate divisions − such as scientific–unscientific, medical–anti-medical, research evidence–anecdotal evidence, and individual–public − while still adhering to medico-scientific discourses as zones of agreements. This enables a modest effort to put both vaccine caution and vaccine confidence on the map of improvisations of health activism and the social movements more generally. Inaddition, it highlights the limits to liminality. In an adult-centric debate that silences young people’s views on (child) vaccinations, I propose the strategy of ‘following silences’ as an additional form of agreement. Finally, I argue that afocus on agreements and silences in conflicts is in alignment with anthropological and post-structural research which commonly focuses onliminal zones and continuities and sheds light on complexities in a nuanced and ‘thick’ manner.

  • 62.
    Knezevic, Zlatana
    Dalarna University, School of Health and Welfare, Social Work.
    Bortom biovälfärden: Intersektionella orättvisor i barndomar och den sociala barnavården2022Conference paper (Other (popular science, discussion, etc.))
    Abstract [sv]

    Presentationen utgår från den delen av min doktorsavhandling och senare vidareutvecklingar som kretsar kring den sociala barnavårdens praktik; mer specifikt barnavårdsutredningar (barn upp till 12 år) och eventuella rekommenderade åtgärder som respons på intersektionella orättvisor i barndomar. Jag belyser förändringsbehov och möjligheter till ett socialt arbete där rättighets- och rättviseperspektiv hamnar i förgrunden - bortom biovälfärdens dilemman.

    Ett av biovälfärdens dilemman är att säkerställa att barndomar är fria från våld samtidigt som våldets och orättvisornas symptom är i blickpunkten, inte problemet och orättvisorna i sig. Fokus på långtgående risker och psykosomatiska konsekvenser synliggör inte bara vissa våldssituationer och våldsformer framför andra. Det förstärker även professionellas och forskningens betydelse i utredningar. Dock medför detta också en objektifiering av barnkroppar varför barns delaktighet som rättighetsbärande subjekt med röst blir svårt att leva upp till. Vidare diskuteras avsaknaden av respons på orättvisor i form av rasism och våld utanför hemmet samt åtgärdernas begränsningar i relation till skydd. En slutsats som dras är att skydd på inget enkelt sätt kan likställas med insatser annat än när det rör sig om tvångsåtgärder.  

    Möjligheterna är många till en bättre hantering av problem genom förändrade lösningar. Jag diskuterar behovet av att utforma nya insatser som är frivilliga och skyddande samt vikten av att stärka unga människors delaktighet såväl i insatsutformningen som vid rekommendation av insatser. Det räcker dock inte att enbart identifiera nya insatsbehov så länge insatser förutsätter vuxnas samtycke. Förändringsbehov avseende dessa villkor behöver därför ses över. 

  • 63.
    Knezevic, Zlatana
    Dalarna University, School of Health and Welfare, Social Work.
    Broadening Ethnographic Following: From Following Conflicts to Following Agreements and Silences in Vaccination Debates2024In: Ethnos, ISSN 0014-1844, E-ISSN 1469-588X, p. 1-18Article in journal (Refereed)
    Abstract [en]

    George Marcus’s methodology for multi-sited ethnography is widely discussed and applied in anthropology and the strategy of ‘following the conflict’ has been a fruitful approach to studying controversies and conflicts. Drawing on my shifting methodology in the initial stages of a digital ethnography project on vaccination-related online community forums, I explore ‘the war’ on vaccines using a broadened strategy that includes following agreements and silences within the controversy. By examining the debate in conjunction with medical anthropology research, I discuss how both vaccine-cautious and vaccine-confident forum members challenge conventional debate divisions, such as scientific–unscientific, evidential–anecdotal and genetic–environmental, while still adhering to medico-scientific discourses as zones of agreement. Whereas an agreement-oriented methodology contributes to research on liminal zones and reconfigured forms of bio-citizenship and literacy, the strategy of ‘following silences’ highlights the limits to liminality in a debate underpinned by adultism that silences the views of young people.

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  • 64.
    Knezevic, Zlatana
    Dalarna University, School of Health and Welfare, Social Work.
    Det sociala arbetets mångfasetterade verksamhetsfält: etnografiska perspektiv på det sociala arbetets praktik2024In: Socialt arbete: i gränslandet mellan teori och praktik / [ed] Zlatana Knezevic, Stockholm: Liber, 2024, p. 60-76Chapter in book (Other academic)
  • 65.
    Knezevic, Zlatana
    Dalarna University, School of Health and Welfare, Social Work.
    En internationell postkolonial belysning av socialt arbete2024In: Socialt arbete: i gränslandet mellan teori och praktik / [ed] Zlatana Knezevic, Stockholm: Liber, 2024, p. 78-96Chapter in book (Other academic)
  • 66.
    Knezevic, Zlatana
    Dalarna University, School of Health and Welfare, Social Work.
    Epistemic Justice: A Useful Concept for Children and Young People?2023In: The 11 International Conference on Nusantara Philosophy: Epistemic Justice: Contesting Knowledge within Social World / [ed] Faculty of Philosophy, Universitas Gadjah Mada, Yogyakarta, Yogyakarta, Indonesia, 2023, p. 40-Conference paper (Refereed)
    Abstract [en]

    Knowledge and theory are developed by adults, for adults, and often about adults. This includes mainstream research about children and youth, which is frequently criticised for being adultcentric. Similar critique is also applicable to feminist theory, feminist philosophy, and other critical studies that focuses largely on adults. With these insights, it is necessary to consider whether and how the feminist philosopher Miranda Fricker's concept of epistemic justice might be useful in attempting to address social justice issues in childhoods and youth.

    The concept of epistemic injustice, as discussed by Fricker, has helped to highlight racist and sexist discriminatory practices. Such injustices are claimed to be founded on prejudices and unjustified treatment. However, it could be challenging to conceptualise epistemic wrongdoings in these ways when it comes to how people and groups, such as children and minors, who are often regarded as irrational or cognitively and morally immature, are treated. Children and adolescents are generally regarded to have lower epistemic capacities than adults since they are not fully developed. In developmental psychology, for example, these developmentalist representations are considered as facts and findings, rather than prejudiced. Additionally, the traditional conception of knowledgeable and morally capable subjects may include moral and ethical obligations. Children may not end up in prisons after committing crime in those environments where it is believed that they lack the capacity to discern right from wrong. And yet, the same conception of children also denies them the right to vote in “democratic” societies and be taken seriously as knowledgeable and moral service users, patients or pupils.

    In this essay, I make an attempt to elaborate on epistemic justice through the lenses of critical childhood studies, postcolonial feminist theory and intersectionality. Drawing on my doctoral dissertation on intersecting injustices in child welfare social work in Sweden, I describe instances in which children are subject to epistemic injustices. I argue that the psychobiological objectification of children, the exclusion of children's narratives as accounts of evidence and (in)justice but also distinctive modes of moral differentiation and othering of some children's childhoods, are all examples of epistemic injustices in childhoods. Finally, I turn to research on child and youth activism to highlight some important considerations that a recognition of children and young people as epistemic and moral subjects brings to the debate about epistemic justice issues as well as in imagining less adultist and more child-friendly societies and worldviews.

  • 67.
    Knezevic, Zlatana
    Dalarna University, School of Health and Welfare, Social Work.
    Internationalising a nationalised programme: challenges and opportunities2023Conference paper (Other academic)
    Abstract [en]

    Apart from global inequalities and structural obstacles at the university level, there are additional discipline-specific challenges concerning internationalisation work in higher education. This paper will discuss these issues in relation to social work as an academic discipline and profession and from the perspective of my work as an international coordinator and assistant professor in a social work education programme in a Swedish context. First, I introduce social work as an ambiguous discipline and profession concerning its nationalised-international nexus. By drawing attention to a concrete current political development, I discuss the paradoxical relationship between, on the one hand, the global definition of social work and, on the other hand, criticism of nationalised social work and its Eurocentrism and professional imperialism. Addressing decolonial critical pedagogy and the notions of epistemic disobedience, unlearning, and pluriversity, I discuss how to work for change within the mentioned constraints.

  • 68.
    Knezevic, Zlatana
    Dalarna University, School of Health and Welfare, Social Work.
    Introduktion - Varför ännu en bok om teori och praktik för socialt arbete?2024In: Socialt arbete: i gränslandet mellan teori och praktik / [ed] Zlatana Knezevic, Stockholm: Liber, 2024, 1, p. 9-26Chapter in book (Other academic)
  • 69.
    Knezevic, Zlatana
    Dalarna University, School of Health and Welfare, Social Work.
    NY-SATS Socialtjänstens insatser som domän för skydd och delaktighet för barn: Ett förändringsprojekt för nya insatser2022Conference paper (Other (popular science, discussion, etc.))
    Abstract [sv]

    Projekt i planerings- och uppstartsfas

    Forskningsprojektet fokuserar på Socialtjänstens insatser för barn upp till 12 års åldern och baserar sig på tidigare forskning som visar att trots de många frivilliga insatser för barn som finns och rekommenderas barn i dag ger insatserna sällan skydd från våld och kräkningar.

    Förutom behovsanalyser avseende nya insatser som ger skydd syftar projektet också till att undersöka hur barn görs delaktiga när information om insatser ges, vilka insatser som rekommenderas, samt vid utformning av insatser. Vidare utforskas de socialpolitiska möjligheterna och begränsningarna för detta förändringsarbete och den ökade delaktigheten för barn som brukare och nya skyddsorienterade insatser detta inbegriper, liksom förutsättningarna för barn att tillvarata skyddande frivilliga insatser. 

    Behovsanalysen kommer att basera sig på 

    -       Kartläggningar av befintliga insatser utifrån ett skydds- och delaktighetsperspektiv

    -       Intervjuer med barn som har varit brukare 

    -       Gruppintervjuer med professionella

    -       Policyanalyser   

  • 70.
    Knezevic, Zlatana
    Dalarna University, School of Health and Welfare, Social Work.
    Socialt arbete: i gränslandet mellan teori och praktik2024Collection (editor) (Other academic)
  • 71.
    Knezevic, Zlatana
    Dalarna University, School of Health and Welfare, Social Work.
    The Biopolitics of Childhood2022In: The Routledge Handbook of International Critical Social Work: New Perspectives and Agendas / [ed] Stephen A. Webb, Routledge, 2022, 1, p. 192-204Chapter in book (Refereed)
    Abstract [en]

    This chapter puts children and childhoods at the forefront of critical social work by drawing on the theoretical legacy of Michel Foucault and the concept of biopolitics. While children and childhoods were not the primary focus of his work, it is argued that Foucault made significant contributions to our understanding of child welfare social work as a biopolitical discipline and practice, as well as contemporary rights discourses. The chapter examines how biopolitics reduces ‘the social’, particularly the social worlds of children, to affective ‘milieus’, stages, lives that can be intervened in from within and invested in for the future. The notion of biowelfare is used to discuss recent biopolitical articulations which focus on the malleable resilient subject as an end-goal in anticipation of a neoliberal uncertain future. The chapter proposes critical childhood studies as a useful lens for navigating a terrain in which objectification and reduction of childhoods concurrently inform rights and justice discourses, making debate and contestation challenging.

  • 72.
    Knezevic, Zlatana
    Dalarna University, School of Health and Welfare, Social Work.
    The Child as the Other: Some Epistemological Considerations2023In: Feminist Philosophy: Time, history and the transformation of thought / [ed] Myreböe, S., Pálmadóttir, V. & J. Sjöstedt, Huddinge: Södertörns högskola, 2023, 1, p. 231-250Chapter in book (Refereed)
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  • 73.
    Knezevic, Zlatana
    Dalarna University, School of Health and Welfare, Social Work.
    Young and Vaccinated?: Children and Young People’s Perspectives on Covid-19 Vaccinations2022Conference paper (Other (popular science, discussion, etc.))
    Abstract [en]

    The research project is inspired by an ongoing study showing that although children and young people are central subjects to the debates on vaccine-preventable diseases, and constitute the main target of vaccines, young people are largely absent in public debates and research about vaccination-related attitudes and decision-making processes. 

    In the pre-pandemic time, vaccination attitudes were commonly discussed in relation to parents’ views and decision-making processes concerning preventable “child diseases”. Despite the fact that the focus has been on parents, children have been central to arguments and practices, as both positive and negative attitudes toward immunizations may be expressed as care for children. The perspectives of children and young people themselves, particularly in relation to covid-19 vaccinations, are largely unexplored. 

    In this research project, interviews will be conducted with children and young people, from the age of 12, about their views, decision-making processes and resistances in the context of covid-19 vaccinations. Focusing particularly on children and young people in Sweden whose views differ from the views of parents, health professionals or other adults, this project aims to foreground resistances in childhoods and youth in general and expand the notion of resistance in vaccination contexts in particular. Experiences from different Swedish Regional Councils and diverse procedures concerning assessments of age and maturity will be included in order to explore how young people navigate in terrains that requires adult consent and how these procedures enable but also constrain children and young people’s vaccination-related decision-making. 

  • 74.
    Kreicbergs, Ulrika
    et al.
    Louis Dundas Centre, Great Ormond Street Institute of Child Health, University College London, UK..
    Landfeldt, Erik
    IQVIA.
    Sejersen, Thomas
    Karolinska University Hospital, Stockholm, Sweden.
    Cortina Borja, Mario
    UCL Great Ormond Street Institute of Child Health.
    Udo, Camilla
    Dalarna University, School of Health and Welfare, Social Work.
    "Not only has she survived, but she lives a happy life": a nationwide study on parents' perspective on their child's treatment2024Conference paper (Refereed)
  • 75.
    Kylén, Maya
    et al.
    Dalarna University, School of Health and Welfare, Caring Science/Nursing. Lund University.
    Schön, Ulla-Karin
    Dalarna University, School of Health and Welfare, Social Work. Stockholm University.
    Pessah-Rasmussen, Hélène
    Elf, Marie
    Dalarna University, School of Health and Welfare, Caring Science/Nursing.
    Patient Participation and the Environment: A Scoping Review of Instruments2022In: International Journal of Environmental Research and Public Health, ISSN 1661-7827, E-ISSN 1660-4601, Vol. 19, no 4, article id 2003Article in journal (Refereed)
    Abstract [en]

    Patient participation and the environment are critical factors in achieving qualitative healthcare. We conducted a systematic scoping review using Arksey and O’Malley’s framework to identify instruments intended to measure patient participation. We assessed those instruments’ characteristics, which areas of the healthcare continuum they target, and whether environmental factors are considered. Instruments were considered eligible if they represented the patient perspective and measured patient participation in healthcare. The search was limited to articles written in English and published in the last 10 years. We extracted concepts (i.e., patient empowerment, patient participation, and patient-centeredness) based on the framework developed by Castro et al. and outcomes of significance regarding the review questions and specific objectives. The search was conducted in PsycINFO, CINHAL/EBSCO, and PubMed in September 2019 and July 2020. Of 4802 potential titles, 67 studies reported on a total of 45 instruments that met the inclusion criteria for this review. The concept of patient participation was represented most often in these studies. Although some considered the social environment, no instrument was found to incorporate and address the physical environment. Thirteen instruments were generic and the remaining instruments were intended for specific diagnoses or healthcare contexts. Our work is the first to study instruments from this perspective, and we conclude that there is a lack of instruments that measure aspects of the social and physical environment coherently as part of patient participation. © 2022 by the authors. Licensee MDPI, Basel, Switzerland.

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  • 76. Landfeldt, Erik
    et al.
    Udo, Camilla
    Dalarna University, School of Health and Welfare, Social Work. Stockholm University; Marie Cederschiöld University, Stockholm; Center for Clinical Research Dalarna-Uppsala University, Falun.
    Lövgren, Malin
    Marie Cederschiöld högskola.
    Sejersen, Thomas
    Kreicbergs, Ulrika
    Marie Cederschiöld högskola.
    Health-related quality of life of children with spinal muscular atrophy in Sweden: A prospective cohort study in the era of disease-modifying therapy2023In: European journal of paediatric neurology, ISSN 1090-3798, E-ISSN 1532-2130, Vol. 46, p. 67-73Article in journal (Refereed)
    Abstract [en]

    The objective of this study was to estimate change over time in health-related quality of life (HRQoL) of children with spinal muscular atrophy (SMA) in Sweden. Children with SMA were identified via the National Patient Register by the National Board of Health and Welfare in Sweden. Patient HRQoL was caregiver proxy-assessed using the Pediatric Quality of Life Inventory 4.0 Generic Core Scales at baseline, as well as at 6, 12, and 18 months of follow-up. Results were stratified by SMA type. Mothers and fathers to 27 children with SMA (mean patient age: 9.17 years; 59% female) participated in the study. All patients received disease-modifying therapy. At baseline, across SMA types, the mean total score was estimated at between 52.68 and 59.19, Physical Functioning score at between 26.39 and 40.34, Emotional Functioning score at between 66.82 and 68.57, Social Functioning score at between 55.00 and 70.45, and School Functioning score at between 70.45 and 78.33. The mean annual total score change was estimated at −2.03 for SMA type I, 4.11 for SMA type II, and 1.12 for SMA type III. In conclusion, we show that SMA has a detrimental impact on HRQoL that extends above and beyond somatic disability. Children with SMA type II experienced a dramatic increase in HRQoL over time, predominantly related to improvement in physical and social functioning. Our data helps quantify the patient burden of disease and adds to the rapidly expanding body of evidence of the effectiveness of recently approved disease-modifying therapies for SMA. © 2023 European Paediatric Neurology Society

  • 77. Larsson-Lund, Maria
    et al.
    Pettersson, Agneta
    Strandberg, Thomas
    Dalarna University, School of Health and Welfare, Social Work. Örebro universitet.
    Team-based rehabilitation after traumatic brain injury: a qualitative synthesis of evidence of experiences of the rehabilitation process2022In: Journal of Rehabilitation Medicine, ISSN 1650-1977, E-ISSN 1651-2081, Vol. 54, article id jrm00253Article in journal (Refereed)
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  • 78. Lennartsson, Carin
    et al.
    Rehnberg, Johan
    Dahlberg, Lena
    Dalarna University, School of Health and Welfare, Social Work. Karolinska Institutet; Stockholm University.
    The association between loneliness, social isolation and all-cause mortality in a nationally representative sample of older women and men2021In: Aging & Mental Health, ISSN 1360-7863, E-ISSN 1364-6915, Vol. 26, no 9, p. 1821-1828Article in journal (Refereed)
    Abstract [en]

    Objectives:  Individuals who feel lonely and those who are socially isolated have higher mortality risks than those who are not lonely or socially isolated. However, the importance of loneliness and social isolation for survival is rarely analysed in the same study or with consideration of gender differences. The aim was to examine the separate, mutually adjusted, and combined effects of loneliness and social isolation with mortality in older women and men.

    Methods:  Data from the SWEOLD study, a nationally representative sample of people aged 69+ years living in Sweden, was combined with register data on mortality and analysed using Cox regressions.

    Results:  Mortality was higher among older women and men with higher levels of loneliness or social isolation. Social isolation was more strongly associated with mortality than loneliness and the association remained when controlling for health. The combined effects of loneliness and social isolation did not surpass their independent effects.

    Conclusion:  Loneliness and social isolation is associated with an increased mortality risk, and social integration should be a prioritised target for activities and services involving older adults. 

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  • 79.
    Liljas, Juvas Marianne
    et al.
    Dalarna University, School of Teacher Education, Educational Work.
    Anåker, Anna
    Dalarna University, School of Health and Welfare, Caring Science/Nursing.
    Borg, Farhana
    Dalarna University, School of Teacher Education, Educational Work.
    Isberg, Jenny
    Dalarna University, School of Health and Welfare, Sport and Health Science.
    Randell, Eva
    Dalarna University, School of Health and Welfare, Social Work.
    From, Ingrid
    Dalarna University, School of Health and Welfare, Caring Science/Nursing.
    Rapport från det tvärdisciplinära forskningsnätverket Internationalization and sustainability in the learning goals in higher education from an interdisciplinary research perspective2021Report (Other academic)
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  • 80. Lilliehorn, Sara
    et al.
    Fjellfeldt, Maria
    Dalarna University, School of Health and Welfare, Social Work.
    Högström, Ebba
    Markström, Urban
    Contemporary Accommodation Services for People with Psychiatric Disabilities – the Simple Taxonomy for Supported Accommodation (STAX-SA) Applied and Discussed in a Swedish Context2023In: Scandinavian Journal of Disability Research, ISSN 1501-7419, E-ISSN 1745-3011, Vol. 25, no 1, p. 92-105Article in journal (Refereed)
    Abstract [en]

    This article focuses on the stock of accommodation service units for people with psychiatric disabilities in Sweden and the classification of supported accommodation. We examined 122 units in 12 municipalities in Sweden and classified them according to the Simple Taxonomy for Supported Accommodation (STAX-SA). We found an obvious variation in the field and a movement into a recovery-oriented direction and towards individuality. There is an emphasis on Move-On that seems to expand into and beyond floating outreach support, and there is a relaxation of service units’ boundaries concerning commitment and target groups. The correspondence to STAX-SA was quite low (48%), and the applicability to ‘real world’ services was not satisfactory. When capturing variation and change in a rich dataset, STAX-SA is too reductive. However, STAX-SA was a successful point of departure in the analysis that opened up for identifying diversities and movement. We suggest some adjustments to increase its applicability.

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  • 81.
    Lyrberg, Ann
    et al.
    Gavle Univ, Dept Social Work & Criminol, Gavle, Sweden.;Uppsala Univ Reg Gavleborg, Ctr Res & Dev, Gavle, Sweden..
    Jess, Kari
    Dalarna University, School of Health and Welfare, Social Work.
    Forinder, Ulla
    Univ Gavle, Dept Social Work & Criminol, Gavle, Sweden..
    Barns upplevelser av en intervention i familjer där vuxna har ett problematiskt bruk av alkohol och droger2024In: Nordic Studies on Alcohol and Drugs, ISSN 1455-0725, E-ISSN 1458-6126Article in journal (Refereed)
    Abstract [en]

    Aim: To investigate children's experiences of the intervention Me and my Family. Me and my Family is an intervention, for families with parental substance use problems (SUP) provided by Swedish social services outpatient care, includes eight weekly sessions where family members communicate how the SUP affects the family. Method: Data consists of 17 qualitative interviews with children, 7 to 19 years old. The qualitative data were analysed using a thematic approach, initially inductively and then discussed by adding salutogenic perspective. Results: The results are presented in three themes. Regardless of the children's varying ages, the results indicate that participating in the intervention has helped the family break the taboo surrounding parental substance use and enabled the young participants to communicate with their family members differently. The intervention also contributed to stronger bonds between children and their parents.

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  • 82.
    Löfkvist, Ulrika
    et al.
    Uppsala University, Uppsala, Sweden; Karolinska Institute, Stockholm, Sweden.
    Nilsson, Sandra
    Dalarna University, School of Health and Welfare, Social Work. Region Dalarna, Sweden.
    Thalén, Yvonne
    Central Hospital Karlstad, Karlstad, Sweden.
    Östlund, Elisabet
    Karolinska University Hospital, Stockholm, Sweden.
    Mared, Hanna
    Karolinska University Hospital, Stockholm, Sweden.
    Johansson, Carina
    Region Västra Götaland, Borås, Sweden.
    Anmyr, Lena
    Karolinska Institute, Stockholm, Sweden; Karolinska University Hospital, Sweden.
    Karltorp, Eva
    Karolinska Institute, Stockholm, Sweden; Karolinska University Hospital, Stockholm, Sweden.
    Gender differences in caregiver's use of spoken language with young children who are hard-of-hearing2022In: International Journal of Pediatric Otorhinolaryngology, ISSN 0165-5876, E-ISSN 1872-8464, Vol. 156, article id 111103Article in journal (Refereed)
    Abstract [en]

    PURPOSE: Shared parenting among caregivers of different gender is common in the Swedish society. It is unclear if this includes shared contribution for children's language development. The objective of this cross-sectional study was to explore the natural language environment of children who were hard-of-hearing compared to typically hearing controls.

    METHODS: Seventy-two families with children aged 7-35 months participated; 22 children who were hard-of-hearing (Cochlear implants, n=11; Hearing aids, n=11) and 50 controls with typical hearing. The majority of caregivers had higher education background level, especially in the control group. Families conducted a daylong recording with the Language Environment Analysis technology, when both parents were present at home. An Interpreted Time Segmental analysis was performed to extract information about female versus male caregivers quantitative word use.

    RESULTS: The results showed significant gender differences related to number of adult words, with less male words than female words (p <0.001). Male caregivers of children who were hard-of-hearing contributed with around 27 % of adult words during the recordings while males in the control group contributed with 37 %. There was a larger variation in number of female words in the study group than for controls, especially in mothers of children with cochlear implants.

    CONCLUSIONS: Female caregivers talk significantly more close to young children than male caregivers, and especially in the subgroup of children with cochlear implants. Children who are hard-of-hearing are dependent on a rich language environment, and might be especially vulnerable if male caregivers are less involved as language facilitators. More studies are needed to explore caregiver gender differences, both related to quantitative and qualitative language stimulation.

  • 83.
    Lövgren, Malin
    et al.
    Marie Cederschiöld högskola.
    Udo, Camilla
    Dalarna University, School of Health and Welfare, Social Work.
    Eklund, Rakel
    Uppsala universitet.
    Kreicbergs, Ulrika
    Marie Cederschiöld högskola.
    Is the Family Talk Intervention feasible in pediatric oncology? An evaluation of a family-based psychosocial intervention2022Conference paper (Refereed)
    Abstract [en]

    Background and Aims: As there are few evaluated family interventions in pediatric oncology, this study aimed to pilot-test a family-based psychosocial intervention, the Family Talk Intervention (FTI), in pediatric oncology in terms of retention, delivery, response rate, and acceptability from the parents’ and ill children’s perspectives. Methods:This pre-post pilot study included 26 families (115 family members) affected by childhood cancer of which a majority had a CNS tumor or relapse. FTI is led by professionals, often social workers, and aims to facilitate family communication about illness-related subjects, e.g. prognosis, support parenting, and make the children’s needs visible. FTI encompasses six meetings, both individual and as a family. Meeting 5, referred to as “the family talk”, is preferably led by the parents. Extra meetings are offered if needed. This abstract includes observational and surveys data, and interviews with parents and ill children (sibling data is presented elsewhere). Results: All families who started FTI underwent the full intervention. Survey response rate varied between 100% and 71% over time. Extra meetings were held with most families. The parents stated that FTI filled a gap of support to the family as a unit and that, since FTI was conducted at home, it felt safe and supportive. According to most parents and ill children, FTI came right in time, included a reasonable number of meetings, with appropriate length. The family members felt listened to and understood. They reported that FTI had helped them, e.g. with family communication, adjustment of their behavior, and strengthened relationships. The parents valued the children’s perspectives being considered, but some felt uncomfortable leading meeting. Conclusions: FTI was valuable and helpful according to the parents and the ill children. Even if FTI seemed feasible in pediatric oncology it would benefit from being slightly modified before a large trial can be conducted. 

  • 84.
    Lövgren, Malin
    et al.
    Ersta Sköndal Bräcke högskola.
    Udo, Camilla
    Dalarna University, School of Health and Welfare, Social Work. Ersta Sköndal Bräcke högskola; Center for Clinical Research Dalarna- Uppsala University.
    Kreicbergs, Ulrika
    Ersta Sköndal Bräcke högskola.
    Is the Family Talk Intervention feasible in paediatric oncology? An evaluation of a family-based psychosocial intervention2022In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 111, no 3, p. 684-692Article in journal (Refereed)
  • 85.
    Markström, Urban
    et al.
    Umeå universitet, Institutionen för socialt arbete.
    Högström, Ebba
    Department of Spatial Planning, Blekinge Institute of Technology, Sweden.
    Fjellfeldt, Maria
    Dalarna University, School of Health and Welfare, Social Work.
    Mental health supported accommodation services in a post-deinstitutionalised era: Experiences from Swedish service providers2023In: Alter;European Journal of Disability Research ;Journal Europeen de Recherche Sur le Handicap, ISSN 1875-0672, E-ISSN 1875-0680, Vol. 17, no 3, p. 39-56Article in journal (Refereed)
    Abstract [en]

    The movement towards deinstitutionalisation of mental health services has created a space for new and community-based solutions in western countries, but the field still seems to lack coherent ideological and practical features. This is also evident for issues related to housing. The aim of this article is to examine the characteristics of supportive accommodation services for people with psychiatric disabilities in Sweden, according to the experiences of local service providers. The focus is placed on the services’ organizational setting, main orientation, and conceptual content. This article is based on a multiple case study of ten Swedish municipalities, purposely selected regarding size, location, and demographic features. Data mainly consist of interviews with key informants in the social service organisation. The results indicate the emergence of a new generation of service users with complex needs, who challenge both the organisation and the content of the service offered. Group homes and mobile housing support appeared as pillars in the service supply, but several local and pragmatically oriented solutions were also identified, as well as ambitions to scale down the extent of institutional settings. The guiding idea present at most sites is a strive towards increased autonomy among service users. 

  • 86.
    Marmstål Hammar, Lena
    et al.
    Dalarna University, School of Health and Welfare, Caring Science/Nursing. Mälardalens Högskola.
    Falk Johansson, Marcus
    Dalarna University, School of Health and Welfare, Care Sciences.
    Dahlberg, Lena
    Dalarna University, School of Health and Welfare, Social Work.
    McKee, Kevin
    Dalarna University, School of Health and Welfare, Social Work.
    Summer Meranius, Martina
    Mälardalens Högskola.
    Exhausted and trapped in isolation. Caring for a spouse with dementia during the Covid-19 pandemic2021In: Family Caregiving (HS Poster), 2021, p. 800-801Conference paper (Refereed)
    Abstract [en]

    Even before the Covid-19 pandemic, spouse carers of persons with dementia (PwDs) found their care responsibilities overwhelming and had little time to focus on their own lives. To minimize the risk of being infected with Covid-19, older persons are recommended to self-isolate in their homes, while formal support such as respite care and day care centers are withdrawn. This study involved semi-structured interviews with 24 spouse carers of community-living PwDs, with the aim of describing their situation during the pandemic. The interviews were analyzed with qualitative content analysis. Results revealed that they commonly declined help because of the perceived risk of their spouse being infected with Covid-19 and thus also possibly causing their death. They described feelings of being trapped in their situation, as they experienced having no choice than take all responsibility for the care of their partner themselves, with cost of being unable to take necessary breaks. This was described as making an already strained situation almost unbearable, which led to conflicts with their partner. However, the spouses also described positive aspects due to strategic changes in health and social care provision to prevent the spread of the virus, such as greater staff continuity in home care services, and patient transportation service. These made the PwD less stressed and influenced their everyday life positively. It could be concluded that the extent burden during the Covid-19 pandemic calls for extensive development of tailored support to better tackle the rapid changes that can occur in a society.

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  • 87.
    Marmstål Hammar, Lena
    et al.
    Dalarna University, School of Health and Welfare, Caring Science/Nursing. Karolinska Insitute, Mälardalen University.
    Williams, Christine L
    Florida Atlantic University, USA.
    Meranius, Martina Summer
    Mälardalen University.
    McKee, Kevin
    Dalarna University, School of Health and Welfare, Social Work.
    Being 'alone' striving for belonging and adaption in a new reality: The experiences of spouse carers of persons with dementia2021In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 20, no 1, p. 273-290, article id 1471301219879343Article in journal (Refereed)
    Abstract [en]

    Background and aim: Spouse carers of a person with dementia report feeling lonely and trapped in their role, lacking support and having no time to take care of their own health. In Sweden, the support available for family carers is not specialised to meet the needs of spouse carers of people with dementia. The aim of the study described in this paper was to explore spouse carers’ experiences of caring for a partner with dementia, their everyday life as a couple and their support needs.

    Methods: Nine spouse carers of a partner with dementia living at home were recruited through a memory clinic and a dementia organisation. Semi-structured interviews were conducted with the participants, focusing on their experiences of providing care, their support needs in relation to their caring situation, their personal well-being and their marital relationship. The interviews were transcribed and underwent qualitative content analysis.

    Results: The analysis resulted in one overall theme Being   ‘alone’   striving   for   belonging   and adaption  in  a  new  reality, synthesized from four sub-themes: (1) Being  in  an  unknown  country; (2) Longing  for a  place  for  me  and  us; (3) Being  a  carer  first  and  a  person  second; and (4) Being  alone  in  a relationship.

    Conclusions: The training of care professionals regarding the unique needs of spouse carers of people with dementia needs improvement, with education, in particular, focusing on their need to be considered as a person separate from being a carer and on the significance of the couple’s relationship for their mutual well-being.

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  • 88.
    Mattsson, Lisa
    et al.
    Dalarna University, School of Health and Welfare, Social Work.
    Tiverman, Olivia
    Dalarna University, School of Health and Welfare, Social Work.
    Framgångsfaktorer och hinder för samverkan och informationsutbyte gällande föräldrars drogproblematik: En intervjustudie med socialsekreterare och poliser2024Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    A study revealed a knowledge gap regarding collaboration between social workers in child and family services and police officers. The aim was to investigate the obstacles and success factors in collaboration and information exchange that social workers and police officers experience in cases involving parental substance abuse. The method used was a qualitative interview study involving four social workers and four police officers who were interviewed using semi-structured interviews. The results were analyzed using thematic analysis and linked to previous research and a systems theory perspective. Findings indicate that collaboration is largely constrained by confidentiality issues and differing objectives. Good relationships and trust are seen as a success factor for information exchange, while a lack of knowledge about each other's professions is identified as a barrier. From a systems perspective, collaboration is influenced by all three systems: micro, meso, and macro.

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  • 89.
    Mattsson, Rebecka
    et al.
    Dalarna University, School of Health and Welfare, Social Work.
    Moustafa, Nouven
    Dalarna University, School of Health and Welfare, Social Work.
    Missbrukshandläggares upplevelse av arbetet med individer som lider av psykisk ohälsa2022Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [sv]

    Syftet med denna studie är att undersöka missbrukshandläggares upplevelse av att arbeta med individer som lider av psykisk ohälsa parallellt med sitt missbruk. Sju intervjuer genomfördes med missbrukshandläggare, som sedan analyserades genom en tematisk analys. Studien visar att respondenterna upplever svårigheter i arbetet med individer som lider av psykisk ohälsa och missbruksproblem och att insatserna som finns inte alltid är anpassade för den här målgruppen. Resultatet i studien diskuteras utifrån tidigare forskning, relevanta teorier, som systemteori och stigmateori. Studien pekar på att det finns behov för vidare forskning kring detta området.

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  • 90. Matérne, Marie
    et al.
    Udo, Camilla
    Dalarna University, School of Health and Welfare, Social Work.
    Thermaenius, Ingrid
    Strandberg, Thomas
    Dalarna University, School of Health and Welfare, Social Work.
    Hälso- och sjukvårdskuratorns funktion i rehabilitering för personer med stroke2022In: Socialmedicinsk Tidskrift, ISSN 0037-833X, no 1, p. 76-86Article in journal (Refereed)
    Abstract [sv]

    Att stödja patienter i rehabilitering efter stroke är en viktig funktion för hälsoochsjukvårdskuratorn. I denna artikel analyseras hälso- och sjukvårdskuratornsfunktion utifrån ett systemteoretiskt perspektiv med stöd av patienternaserfarenheter av resiliens och livskvalitet. Intervjuer med 19 personermed stroke sekundäranalyserades tematiskt och resulterade i fem områdenav betydelse för hälso- och sjukvårdskuratorns funktion. De teman somframkom på mikronivå var: trygghet och förutsägbarhet; mening och hopp.På mesonivå: socialt och formellt stöd; samordna och informera. På makronivå:kunskapsspridning och kompetens. Den legitimerade hälso- och sjukvårdskuratornfunktioner återfinns således systemteoretiskt på alla nivåervilket innebär att de professionellt antar en helhetssyn med fokus på individeni relation till dennes situation och kontext.

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  • 91.
    Mauritzson, Elin
    et al.
    Dalarna University, School of Health and Welfare, Care Sciences. Dalarna University, School of Health and Welfare, Caring Science/Nursing.
    McKee, Kevin
    Dalarna University, School of Health and Welfare, Social Work.
    Elf, Marie
    Dalarna University, School of Health and Welfare, Caring Science/Nursing.
    Borg, Johan
    Dalarna University, School of Health and Welfare, Medical Science.
    Perceptions and experiences of safety at home: a survey among older adults in Sweden2022In: 26th Nordic Congress of Gerontology. Abstracts: Change and continuity, 2022, p. 277-277Conference paper (Refereed)
    Abstract [en]

    Introduction

    Home safety is important to prevent injuries and accidents in older adults living at home. Feeling safe at home is also essential for frail older adults’ well-being. "Ageing in place" is a term focusing on enabling older adults to stay in their ordinary homes, rather than in special housing. But when older adults continue living at home, more injuries and accidents can occur. The aim of this study was to explore older adults’ experiences, preventive measures, and feelings of safety in their home in relation to a range of potential home-based health and safety hazards.

    Methods and Materials

    The study had a cross-sectional design and was based on a national telephone survey among 400 adults over 70 years of age, living at home in ordinary housing in Sweden. Descriptive and comparative statistics were used to analyse the data.

    Results

    The participants rated the importance of feeling safe at home as high, and seldom felt unsafe. Higher age, greater frequency of feeling unsafe at home or in the neighbourhood, access to support, better health, importance of safety and living alone were associated with level of worry or for having taken preventive measures against some but not all hazards in the home.

    Conclusions

    Taking preventive measures is not always is not always associated with experiences or level of worry. Age, feelings of safety, access to support, health and living alone or not, are all factors that can influence level of worry or for taking preventive measures or not against specific hazards in the home.

  • 92.
    Mauritzson, Elin
    et al.
    Dalarna University, School of Health and Welfare, Care Sciences. Dalarna University, School of Health and Welfare, Caring Science/Nursing.
    McKee, Kevin
    Dalarna University, School of Health and Welfare, Social Work.
    Elf, Marie
    Dalarna University, School of Health and Welfare, Caring Science/Nursing.
    Borg, Johan
    Dalarna University, School of Health and Welfare, Medical Science.
    Preventing accidents and injuries: older adults' experiences, worries, and preventive measures regarding home hazards2022In: 36th Annual Conference of the European Health Psychology Society. Abstracts: Charting new territories in health psychology, 2022, p. 707-707Conference paper (Refereed)
  • 93.
    Mauritzson, Elin
    et al.
    Dalarna University, School of Health and Welfare, Care Sciences. Dalarna University, School of Health and Welfare, Caring Science/Nursing.
    McKee, Kevin J
    Dalarna University, School of Health and Welfare, Social Work.
    Elf, Marie
    Dalarna University, School of Health and Welfare, Caring Science/Nursing.
    Borg, Johan
    Dalarna University, School of Health and Welfare, Medical Science.
    Older Adults' Experiences, Worries and Preventive Measures Regarding Home Hazards: A Survey on Home Safety in Sweden2023In: International Journal of Environmental Research and Public Health, ISSN 1661-7827, E-ISSN 1660-4601, Vol. 20, no 2, article id 1458Article in journal (Refereed)
    Abstract [en]

    Home safety is important for preventing injuries and accidents among older adults living at home. Feeling safe at home is also essential for older adults' well-being. Thus, this study aimed to explore older adults' perceptions of safety in their homes by examining their experiences, worries and preventive measures in relation to a range of potential home-based health and safety hazards. The study was a national cross-sectional telephone survey of 400 randomly selected adults over 70 years of age living at home in ordinary housing in Sweden. Participants were asked for their experience of, worry about, and preventive measures taken regarding fifteen home hazards. Data were also collected on background variables including age, health, and cohabitation status. Falls and stab/cut injuries were the most experienced hazards and worry was highest for burglary and falls, while preventive measures were most common for fire and burglary. While older adults' experience and worry regarding home hazards were associated with preventive measures, these associations were not strong and other factors were associated with preventive behaviour. Further identification of the main determinants of older adults' preventive behaviour can contribute to policy for effectively reducing home accidents.

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  • 94. Melin-Johansson, Christina
    et al.
    Sveen, Josefin
    Lövgren, Malin
    Udo, Camilla
    Dalarna University, School of Health and Welfare, Social Work. Ersta Sköndal Bräcke University College, Stockholm; Center for Clinical Research (CKF), Dalarna.
    A third of dying patients do not have end-of-life discussions with a physician: A nationwide registry study.2022In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 20, no 3, p. 357-362Article in journal (Refereed)
    Abstract [en]

    OBJECTIVE: The aim of the study was to explore the proportion of adult patients and next-of-kin who had end-of-life (EOL) discussions and associated factors.

    METHOD: A retrospective nationwide registry study was reported with data from the Swedish Register of Palliative Care. All patients in Sweden in hospitals, nursing homes, own homes, community, and palliative care units during 2015-2017 and their next-of-kin were included. Data were reported to the register by healthcare staff, based on diseased patients' records regarding their last days of life, and were voluntary. Descriptive statistics illustrated the proportion of patients/next-of-kin who had EOL discussions and logistic regressions were used to examine associated factors.

    RESULTS: About half of the patients (46%) did have an EOL discussion, but a third (32%) did not. Associated factors of those who did not have an EOL discussion were dementia (48.5%) or stroke (47.5%), older age (38.4%), being female (33.6%), being cared for in a nursing home (41.3%), or hospital (40.3%), having lost decision-making ability months before death (58.9%), and not having a documented decision to shift to EOL care (82.7%). Younger patients diagnosed with cancer and cared for at a palliative unit were more likely to have EOL discussions. The regression analysis showed similar results for next-of-kin.

    SIGNIFICANCE OF RESULTS: The result shows that not all patients with palliative care needs have equal access to EOL discussions, despite efforts at a national level and the recognized benefits of timely communication about the EOL care. Further efforts must be made to achieve EOL discussions for all patients.

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  • 95.
    Micali, Aurora
    et al.
    Dalarna University, School of Health and Welfare, Social Work.
    Salinas, Minna
    Dalarna University, School of Health and Welfare, Social Work.
    “Det är han med den tjocka plånboken som styr”: En feministisk kritisk diskursanalys av framställningar av sugardating på Flashback Forum2022Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    The purpose of this study is to critically examine the discourses of sugardating and the discursive representations of sugardaters on Flashback Forum, based on how they reflect unequal gender- and power relations. The study also explores the ambiguous connection between sugardating and prostitution on the online forum. This qualitative study is based on a feminist critical discourse analysis as a theoretical and methodological framework. The findings show that sugardating is mainly represented as an arrangement based on equal and free terms. However, this is obscured when sugarbabies are implicitly expected to comply with sex. In addition, a feminist analysis inspired by radical feminist theory as well as the notion of postfeminism highlights how the link between sugardating and prostitution implies an ambiguity in a double sense. Finally, it is discussed how the positive representations of sugardating might affect curious readers to consider entering sugardating.

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  • 96.
    Mohammedzadeh, Sandra
    et al.
    Dalarna University, School of Health and Welfare, Social Work.
    Samuelsson, Jessica
    Dalarna University, School of Health and Welfare, Social Work.
    ”Vi kan inte fungera ensamma i vår egen lillabubbla”: Kvinnojourers samverkansarbete2022Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Intimate partner violence is a common problem in society that affects families, individuals and other relatives in a profound way. The purpose of this study is to investigate how women’s shelters collaborate collaborative work on women who are victims of violence works in practice. Six qualitative interviews were conducted with people that work in different women’s shelters in Sweden and the interviews were analyzed through a thematic analysis. This study shows that people that work in women’s shelters experience collaboration as complex and that there are major obstacles but also opportunities that come with collaboration. The study also shows that the people that work in women’s shelters perceive both difficulties and opportunities, but also a great need for collaboration. Furthermore, this study shows that more research is needed in this area. The results of the study are presented and discussed in conjunction with collaboration theory, previous research and the respondents’ answers.

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  • 97. Morgan, Deborah
    et al.
    Dahlberg, Lena
    Dalarna University, School of Health and Welfare, Social Work.
    Waldegrave, Charles
    Mikulionienė, Sarmitė
    Rapolienė, Gražina
    Lamura, Giovanni
    Aartsen, Marja
    Revisiting loneliness: Individual and country-level changes2021In: Social exclusion in later life: Interdisciplinary and policy perspectives / [ed] Walsh, K., Scharf, T., Van Regenmortel, S. & Wanka, A., Springer Nature, 2021, p. 99-117Chapter in book (Other academic)
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  • 98. Myck, Michal
    et al.
    Waldegrave, Charles
    Dahlberg, Lena
    Dalarna University, School of Health and Welfare, Social Work.
    Two dimensions of social exclusion: Economic deprivation and dynamics of loneliness in later life in Europe2021In: Social exclusion in later life: Interdisciplinary and policy perspectives / [ed] Walsh, K., Scharf, T., Van Regenmortel, S. & Wanka, A., Springer Nature, 2021, p. 311-326Chapter in book (Other academic)
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  • 99.
    Naseer, Mahwish
    et al.
    Dalarna University, School of Health and Welfare, Social Work. Aging Research Center, Karolinska Institutet and Stockholm University.
    Dahlberg, Lena
    Dalarna University, School of Health and Welfare, Social Work. Aging Research Center, Karolinska Institutet and Stockholm University.
    Ehrenberg, Anna
    Dalarna University, School of Health and Welfare, Caring Science/Nursing.
    Schön, Pär
    Calderón-Larrañaga, Amaia
    The role of social connections and support in the use of emergency care among older adults2023In: Archives of gerontology and geriatrics (Print), ISSN 0167-4943, E-ISSN 1872-6976, Vol. 111, article id 105010Article in journal (Refereed)
    Abstract [en]

    Objectives: Limited and inconsistent findings have been reported on the link between social connections and support and emergency department (ED) visits in older populations. Moreover, the adequacy of informal care for older adults has rarely been considered. This study explored the associations of social connections, social support, and informal care with ED visits in younger-old (<78 years) and oldest-old (≥78 years) adults. Methods: This is a prospective cohort study based on community-living adults ≥60 years old participating in the Swedish National Study on Aging and Care in Kungsholmen (N=3066 at wave 1, 2001-2004; N=1885 at wave 3, 2007-2010; N=1208 at wave 5, 2013-2016). Standardised indexes were developed to measure social connections, social support, and informal care. The outcome variable was hospital-based ED visits within 4 years of the SNAC-K interview. Associations between exposure variables and ED visits were assessed through negative binomial regressions using generalised estimating equations. Results: Medium (IRR 0.77; 95% CI 0.59–0.99) and high (IRR 0.77; 95% CI 0.56–0.99) levels of social support were negatively associated with ED visits compared to low levels of social support, but only in oldest-old adults. No statistically significant associations were observed between social connections and ED visits. Higher ED visit rates were seen in oldest-old adults with unmet informal care needs, even if the differences did not reach statistical significance. Conclusions: ED visits were associated with social support levels among adults aged ≥78 years. Public health interventions to mitigate situations of poor social support may improve health outcomes and reduce avoidable ED visits in oldest-old adults. © 2023

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  • 100.
    Naseer, Mahwish
    et al.
    Dalarna University, School of Health and Welfare, Social Work. Aging Research Center, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden.
    McKee, Kevin
    Dalarna University, School of Health and Welfare, Social Work.
    Ehrenberg, Anna
    Dalarna University, School of Health and Welfare, Caring Science/Nursing.
    Schön, Pär
    Aging Research Center, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden.
    Dahlberg, Lena
    Dalarna University, School of Health and Welfare, Social Work. Aging Research Center, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden.
    Individual and contextual predictors of emergency department visits among community-living older adults: a register-based prospective cohort study2022In: BMJ Open, E-ISSN 2044-6055, Vol. 12, no 2, article id e055484Article in journal (Refereed)
    Abstract [en]

    OBJECTIVES: To examine the extent to which contextual factors explain emergency department (ED) visits and ED revisits, additional to that explained by individual factors.

    DESIGN: A register-based prospective cohort study.

    SETTING: Swedish region of Dalarna.

    PARTICIPANTS: Participants were 16 543 community-living adults aged 80 or older who were residents of the Dalarna region of Sweden, excluding older adults who moved out of Dalarna or into residential care during the study period.

    OUTCOME MEASURES: Dependent variables were initial ED visit, and at least one ED revisit within 30 days of an initial ED visit.

    RESULTS: Approximately 36% of the participants visited the ED during the study period with 18.9% returning to the ED within 30 days. For both initial ED visits and ED revisits, the addition of contextual factors to models containing individual factors significantly improved model fit (p<0.001; p<0.022) and the amount of variance explained in the outcome. In the final models, initial ED visit was significantly associated with older age, number of chronic diseases, receipt of home help, number of primary care visits, proportion of 80+ in the population and shorter distance to the ED; while an ED revisit was significantly associated with greater use of social care, number of hospital admissions and disposition (discharged; admitted to hospital) at initial ED visit.

    CONCLUSION: Contextual factors explain variance in initial ED visit, additional to that explained by individual factors alone, which indicates inequitable access to ED care. These findings suggest considering local variations in contextual factors in order to improve health-related outcomes among older adults.

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